thanks for messaging, I’m sad to hear about your daughter, my daughter is nearly 16, we’ve yet to have a diagnosis, 18 months on, she has over 25+ symptoms, similarities and lesions. Our paediatrician is refusing to refer her to a neurologist. We are having to fight so hard to get her any help, she’s having to use a crutch on the days she can’t use her legs properly. I’m scared for her exams, as she’s just had her mocks, and she was really poorly afterwards. She’d had one exam where she got over heated, and her vision went blurry and couldn’t use her arm until she’d cooled down ( about 20 mins). Her short term memory is particularly bad too.
how did your daughter get on? How did she cope with the exams? Do u know of any parental support groups? How does your daughter feel about it? Do u have much support?
Thank you xxx