Good afternoon all,
new to this forum stuff,
as i can’t seem to get on any trials i feel i am left dangling in the wind by the medical
profession.so i have decided to try other things .You can get Sativex(cannabis)in Scotland
and Wales but not England.So have any of you tried Marijuana if so does it help esp pain.
Thanks
Cannabis can be excellent, for relief of spasmodic pain and a happier state of mind. It can establish healthy eating and sleeping patterns and enhance overall well being. All these benefits can be realised without being as stoned as a laboratory chimp!
It’s safety profile is excellent, with it being impossible to over dose. Sadly the only real hazards are closed minded citizens and ‘letter of the law’ police officers. But having said that, even some UK constabularies whilst recognising the illegality of cannabis possession, have said that they would not pursue or prosecute such ‘offenders’.
The tide is changing and even the stuffed shirts of America have allowed medicinal cannabis for a fair number of years, with several states now legalising it recreational sale.
I thought you couldn’t get sativex in Scotland, at least tht is what i was told in August this year
and you can get it in wales
Hello,
Have you considered CBD oil? It certainly helps me with pain and discomfort. It is relaxing but, as the THC content is so low, it is not psychotropic in its effects.
Take a look at the following link
Best wishes
Alun
Can I just clarify re comments about Sativex in Wales- just to set the record straight?
You can only get it when you’ve taken all the other anti spasmodic drugs and they’ve proven to fail, or be untolerated. Also in my Health Authority, you have to be referred to a a specialist in a Neuro Rehabilitation Unit, not your MS Neurologist to get it.
Thanks 
Actually you can overdose on cannabis - its called greening out and in severe cases medical assistance is required, especially in new users. Death is rare but it has been known to occur.
And there are some bad chemicals in cannabis as well as good if you decide to smoke a joint. I am not in favour of anything that alters someone’s mind - that includes people getting drunk on alcohol. There are increasing cases of people getting high and then driving, causing accidents and even killing people.
I’m not a ‘closed mind citizen’ but I would recommend you stick with properly prepared medicinal options which have the hallucinogens removed rather than trying your own remedies. Not all police recognise ‘personal use’ and you could end up in having a long word with the boys in boy (who I swear are getting younger).
Good luck in your research and I hope you find something that works. MS pain is a right bgger, I know my spasms take my breath away but I’m lucky, they don’t happen too often.
JBK xxx
Just a gentle reminder…
The safety (especially with regards to mental health) and efficacy of cannabis is still debated by medical professionals.
Cannabis remains a class B drug. People with MS have been been prosecuted for possession in the past, and there’s no indication from law enforcement that this is likely to change soon.
We would like to remind all forum users this is a public forum and can be seen by anyone.
Many thanks,
Stewart (admin)
[quote=“JellyBellyKelly”]
Actually you can overdose on cannabis - its called greening out and in severe cases medical assistance is required, especially in new users. Death is rare but it has been known to occur. [/quote]
Sincerely, please tell us more. Currently i am of the conviction that nothing in this paragraph is factually correct.
For example: Overdosing on Marijuana: 8 Steps to Avoiding a Bad High
And there are some bad chemicals in cannabis as well as good if you decide to smoke a joint. I am not in favour of anything that alters someone’s mind - that includes people getting drunk on alcohol. There are increasing cases of people getting high and then driving, causing accidents and even killing people.
smoking anything can be bad, but let’s not cancel BBQ season yet. and impaired driving is never a good idea for anyone under any circumstances and thus this observation too, is not really applicable to this topic.
MS pain is a right bgger, I know my spasms take my breath away but I’m lucky, they don’t happen too often
i know of something that might help you with that… 
https://ncpic.org.au/cannabis-you/marijuana-facts/how-to-help-a-friend-who-has-greened-out/ and there are several others.
And my point about driving under the influence of any mind altering drug is applicable Paolo, dismissing it because it is one of several things you should not do is just irresponsible. Police will now test for drugs in the system as part of a road side test just like alcohol. Taking cannabis - still an illegal drug, whatever anyones opinion on the matter - does have side effects and they are not always to transport you to a happy land of peace and health. It can and does cause serious problems and people need to be aware of that.
I’m not getting at you personally Paolo but part of your statement was incorrect. Cannabis is not a panacea for MS symptoms.
As for me personally - I can’t stand the smell of the stuff, I’m one of the few at uni who did not partake - the irony now is not lost on me however.
JBK xx
[quote=“JellyBellyKelly”]
driving under the influence of any mind altering drug is applicable Paolo, dismissing it because it is one of several things you should not do is just irresponsible. [/quote]
I do not think it is irresponsible to disregard chatter about the criminal inappropriateness of driving whilst impaired; this thread was set up to discuss medicinal benefits, not the common knowledge of impaired driving being a criminal act.
If someone wanted to discuss their favourite wine or beer in a different thread, i wouldn’t expect every contributor to reiterate that such drinks aren’t to be enjoyed whilst / before driving.
Some things remain so obvious, that they are simply not valid to certain discussions.
My point remains: if you are so inclined and feel you have no other options, cannabis can be found to be a meaningful and life enhancing addition to your dietary regime.
Going back to the initial post, Sativex is ‘available’ in England but not on the NHS. You can be prescribed it privately and it’s not cheap but it is legal
Stewart points out the disadvantages of cannabis and personally, I wanted Satiex because I wanted to continue working and couldn’t have done that stoned!
So I’d give it some serious and careful consideration before making any choices
Sonia x
Hiya Sonia - feels like I haven’t spoken to you in ages. How are you doing sweetie?
It is so unfair that the Sativex is not on the NHS. We have known for years that cannabis has good benefits as well as bad - take out the bad bits and you think it would be a perfect drug with many uses. But the powers that be say no - defies logic doesn’t it. I hope it’s doing you good hun.
take care
JBK xxx
Sativex is available in England …and on the NHS …my hubby sees a neuro rehabilitation specialist and has been on it snide August last year …I do know NICE are looking into it and it may be stopped at some point but until then his specialist is happy to continue to prescribe.
Hi JBK
I’m now retired so at home trying not to spend anything! I’m still on my feet, albeit with crutches or a walker.
Back to the theme, I’m actually taking Nabilone which is a man-made version of a cannabanoid. It helps for sure and it’s cheap so I have a consultant that’s happy to prescribe it ‘off-licence’ as I tested a lot better with it (they make you do a timed nine hole peg test). I know it helps but likewise, I get pretty forgetful so it’s not perfect. Still hoping that one day, someone will give me Sativex on the NHS.
Likewise, I’m doing this mimic-fasting thing, which is keeping a little control on my weight (I’ve lost over half a stone) and hopefully some neuro improvement. One is definite so I’ll blog that very soon
Good to hear from you, I often spot your posts and make sure you’re doing ok
Sonia xx
Thanks for all the replies,
i went to London to be assessed for the Canbex trial but
my spasticity was not severe enough .It feels severe enough to me.
Have told my consultant i will try anything on a trial to try to find the person i was.
Nothing ever seems to happen.
Thank all and keep smiling
l have been prescribed Sativex - on the NHS - for over 5yrs now. Many other drugs that l tried - and failed with before getting Sativex caused me terrible side-effects. Baclofen Tizanidine Gabapentin etc. All left me unable to function. Certainly not safe to drive whilst under the influence of taking them. Sativex does not have the same effect - thank god. You only need a small amount to help with painful spasms and spasticity. That and magnesium really helps me at night.
I might have to try the fasting - I still need to loose weight.
I’m still belly dancing and now I’m learning ballroom too - I love the waltz and the tango. I’m also doing yoga - gotta keep those legs moving. Its strange how I can dance for 2.5 hours - even a dance fit marathon we did for charity, I did them all but when I tried to go out for an hours walk my legs almost gave up and only sheer angry stubbornness got me home. The doc put me on pregabalin for a few weeks cause the hypersensitivity was really bad but it went away so I came off them.
Other than that hun - everything is ticking along nicely on that slow gradual downward slope
Take care
JBK xxx
Hello JBK,
I find it very interesting that you can dance for hours but cannot walk for long.
When I do Tai Chi, my movements are slow, controlled, powerful and graceful. The same amount of time tending my patio plants will bring me to my knees.
I am reminded of people who stutter, when they sing words, they don’t stutter.
Can it be that a different neural network is being used in all three cases?
Anthony
Hi Anthony
A physiotherapist explained to me that walking is the same movement over and over whereas in dancing you move forwards, backwards, sidewards, turning etc and pace changes (quick, quick slow and all that). She thought it might be that I fatigued the muscles with the walk whereas I don’t with dancing.
Or - brains are weird
JBK xx