Hi There Doctor Geoff,
I am not entirely sure what you are doing and just a little bit concerned at the fact you are trying to research me on 192. I came to this group in good faith to discuss seek support for something I am doing that is clearly quite relevant to M.s Sufferers across the UK. As for 192 itself, you wont find a record for me on there because I used their online form to remove my details from it. Sites like 192 can be a great asset but can also be easily abused. For a while after I got ill i was being bombarded by payday loan offers and debt management schemes and whatever else. The were getting my details from sites exactly like that. I am sure you can understand that when someone gets ill, finances can go to pot and thats exactly what happened to me. The calls didnt exactly help the situation so i did a search on google and guess what. Name popped up everywhere so I went through and filled in forms etc over a few days and put in requests for my personal info not to be on there.
I also had a bit of a problem with a complete nutter in 2012 as a result of my political views and also the fact I was going through an emotional meltdown (he decided to twist the knife at a time when i was vulnerable) at the time because of ill health. It was one of those times that I think many can relate to, particularly most of the people here. You think to yourself - what next! Suffice to say having that information on public sites made me very nervous and truly, I just didnt want to speak to the outside world. And so I had it taken down.
As for knowing which buttons to push, wellā¦youāre right but that was not done intentionally. I wrote what I felt, the wording in the petition are my words, it is truly what I believe and if that has pushed buttons with the people on this forum then good, it makes me pleased that there are other people out there that may feel exactly the same way, that it should be a personal choice and that people I truly do believe that when push comes to shove, what right do the government have to say to someone who is ill, you dont have the right to use this thing that makes you feel better, particularly when you can buy things like alcohol and cigarettes over the counter and the NHS are supplying drugs that are far more dangerous and habbit forming. Take co-codomol for instance. You have codeine which is obviously addictive and you have paracetomol - I doubt anyone will argue that if you give it long enough, that stuff combined with other drugs on prescription can have one heck of a toll on your body. Take enough and the result is disastrous. I had a read of the little panflet in my prescription box. The side effects listed are fairly large. Then you have this little green stuff that to my knowledge has never been proven to have caused death to anyone (obviously there is a lack of research into the psychological effects of it). Why cant someone in pain have it? Itās just mental.
I am trying to answer your questions btw, not to contridict you or be abbrasive but because I have no wish to have your mind playing on the fact that i may be some big company or some strange organisation playing tricks on a forum. If I knew this forum was here, I would have been on here years ago to speak with people who understand M.S and what its like. Maybe it would have helped with the isolation, i dunno. But I am here now, I hope to have pleasant and open exchanges and speak freely with everyone on here and I would hope that would include yourself.
In regards to your comments. I agree, no doubt someone will make a massive profit from it, that is the way of the world but as for the taxation, believe it or not I would not have a problem with that, particularly if it were helping to fund the NHS. The goverment being involved in taxation could also lead to licensing and quality control to make sure that the stuff being sold was of a certain quality which would reduce risks associated with buying it.
As for the weeks use etc, i agree, perhaps a limit on carrying a certain ammount and a boot up the rear end for intention to supply if you are over the limit. Of course it all boils down to the that