morning to all
my husband was diagnoses in Jan this year after 9months of dizziness which was originally thought to be an inner ear condition.
My question to all, has anyone recovered completely from this symptom of dizziness, spinning, feel as they you are drunk (my hubbys words). He has had a course of steroids and this very slightly improved the balance but for a short while, they did however help with his alertness, as the drug started to work he said it was like having his Brain switched on.
if he ever fits the criteria for DMT … Has anyone had their balance significantly improved with this treatment…
anyone’s experience and advice please.
have a good day X
Mitch61,
I too was initially treated for an inner ear problem because I felt drunk, wobbly and the room would start to spin when I lay down. I got to the point that I could no longer stand. For me this was a chunky attack - relapse. I was treated with steroids (given to assist with the bodys normal healing systems) I never thought that the steroids did much. Over an extended period my balance and stability recovered sufficiently for me to ride motor bikes, push bikes and to play squash & ski again.
However my balance was always one of the first issues during subsequent relapses.
No drugs that I have had seemed to make much difference, but my MS nurse taught me some visual exercises to help stop the room spinning and reduce the vertigo.
I wish you and your husband all the best
Mick
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Hi Mitch
It sounds like typical vertigo. It’s horrible.
As Mick said, there are exercises you can do which do help enormously, in particular, the visual ones. A physiotherapist should be able to help you with them. But in the short term, try doing a search on ‘vertigo exercise’. There are a number of websites that explain how to do the exercises. He really needs to do them frequently. In the short term (ie immediately afterwards) they can make the nausea and room spinning feel worse, but that goes fairly quickly.
Disease modifying drugs in the main have no immediate positive effects. Their job is primarily to prevent relapses and manage the severity of relapses. So unfortunately starting a DMD isn’t going to help with the vertigo. Some DMDs do of course have some positive effects for some people (eg Tysabri). But it’s a better idea to start a DMD with no preconceived ideas that his current symptoms will be improved, that way there’s no disappointment factor.
The criteria to start a DMD is two clinically significant relapses. So you need to have any changes documented so that he qualifies for a DMD as soon as possible, assuming he’s been diagnosed with relapsing remitting MS that is.
Best of luck
Sue
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My wife had an episode of labyrinthitus a couple of years back and it has never really cleared up fully, this morning she was looking up and had to hold on because her balance went. She was really unwell with it for about three months.
Hope your husband is OK
Don