Guys I have found, as we all do, days which are very difficult! I would if I’m able to post the link…give it a try! its truly remarkable. Minding your mitochondria | Dr. Terry Wahls | TEDxIowaCity - YouTube
Thanks for the post. I switched to the hunger/gatherer diet about a year ago and have not noticed any improvement. I have not had any seaweed though so might try some. Like Dr. Wahls I am on Tysabri, I am not sure if she gave that up and whether this could be holding back my bodies reaction to the vitamins/sulphur etc.
Fascinating stuff.
Peter
Hi Peter, as she is a doctor I just for some reason would have lent more towards medicine? yet on medicine felt she was slowly still in decline.? I would definitely claim my energy levels are much higher with the hunter/gather…paleo lifestyle. I wish you all the best Peter kind regards John
l am keeping as close as l can to the hunter/gatherer diet by following the Barry Groves eating regime [he is years ahead of Dr Wahls] and l try not to eat grain/bread/cakes/biscuits - plenty of protein/fat/vegetables - high fat/protein/low carb. And to take it one step further l have been taking Spirulina/Chlorella as well. They are an organic ‘super food’. l also take Sea Kelp as l did have an enlarged thyroid/goitre. l do feel more energised - and l have lost weight because l never seem to feel hungry. l find eating carbs just make me hungrier because they increase the need to eat more. l could never eat just one biscuit - or just one of those lovely doughnuts without wanting to eat the whole packet. Once l stopped even trying them - l found the craving went. l do eat bananas - about 2/3 a day as they are high in potassium. Yesterday, l had 2 bananas and grilled salmon with stirfry veg. And found it took me ages to get through my salmon/veg. To-day, a friend took me to the cinema and afterwards we went to a lovely cafe. l had a coffee latte - and my friend also ‘treated’ us to a custard slice. lt looked wonderful - but after eating less then a quarter of it l gave up - the waitress ‘boxed’ it for me to bring home. Now l can remember buying a box of 3 of these cakes and eating all 3. The friend with me ate hers with no trouble - and she is a size 8. So slim you would think a large custard slice would be visible. My OH will enjoy it.
The Barry Groves diet is not just for pwms. lt is for people with high blood pressure/high cholesteral/diabetes and obesity. lt was just a coincedence that he found it helped people with ms.
Last spring l started growing swiss chard - which just keeps on growing - even through snow and ice. The more you pick it the more it grows. l do stirfry it and add other flavours as you would soon get fed up with it.
l am looking at the box that the custard slice is in [from a vienna patisserie] and have no urges to eat it. Now l would, before changing my diet, have scoffed this with no trouble. So our bad eating habits can be changed. And for the better.
F
Hi champion! wow thank you very much for your post very interesting read. I will look up Barry Groves and see what I can find out about him. Thank you for taking the time in sending your post regards John
I am very interested in this and can see why adding all these foods to your diet may help with MS. I am more dubious about the exclusion part of the diet. I followed a very strict exclusion diet for something like five years (no saturated fat, no gluten, no dairy, no sugar, no beer). I was on a slow downward slope for the first three years of this, as I had been since being diagnosed a couple of years before starting the diet. After three years on the diet, I went into and a much sharper decline (with disabling relapses) for the last two years. After that, I gave up the exclusion diet and continued with the sharper rate of decline.
The doctor giving this lecture talks a little about unrecognised allergies but apart from this does not explain why you have to exclude a lot of food groups from your diet. Her argument is that you gain necessary vitamins and minerals by eating three well loaded plates of fruit and veg plus seaweed and good protein. Why do you have to give stuff up? Speaking as an MSer who struggles to keep weight on.
I plan to try this (the adding part, not the exclusion part). Does anyone know where you get seaweed? (I live right in the middle of the country, so getting it from the sea once a week is not an option)
I do not believe a word of any of these quack ideas. Apart from the fact that something apparently causing an improvement in a single person’s MS is meaningless, diet alone cannot cure MS.
Terry Wahls does not claim she has even totally reversed her MS although she has reversed it to an extent. She is also starting to use her methods on others again with some success. If you follow what she is doing it more than just diet however. As suggested above however I doubt much of what she is doing is totally of her own invention.
What is however interesting is that when doctors or those close to them get sick they often turn to other than the official licenced drugs and do sometimes achieve better than would reasonable to expect by means of licenced drugs.
Here is just one of many such reports.
http://www.youtube.com/watch?v=EpMvDe8-qsM&feature=share&list=UUR_kFbcwWy1cKLCkmcMf4lg
Although again I feel the cure word is totally inappropriate
Hi, I looked at that utube video. I was interested that he had proof in the scans that the lesions were going. I have never seen this shown when veins have been cleared.
That guy has his own website:
[website details removed as per T&Cs]
Why do we keep hearing that clinical trials are not done if there is no money to be made by the drug companies!
ie LDN and now these antibiotics.
Regards
Moyna x
I don’t doubt that eating more vegetables and fresh fruit/fish/meat is better for us than eating processed foods. I seriously doubt they are the reason this lady has recovered so dramatically, if this were the case, were is the evidence beyond her giving talks? as a doctor and a patient she would have access to medical research fadcilities and colleagues that could help her prove this. Unyet she’s giving talks? something seems off, why isn’t there any science beyond her using words that sound flashy?
There could be any number of reasons for regression in her symptoms, I’m also aware at no point in her talk did she even mention sunlight or vitamin D3 and there is significant evidence that is related.
Always remember something, we are ill and we will believe anything for a chance of getting better. That makes us very susceptable to suggestion. I really struggle to believe there is such a simple fix as “diet” for the symptoms of ms. There are cases of people with all kinds of diseases suddenly improving, given the ammount of people with ms it’s fair to assume the chances of such an anomoly happening to an ms sufferer are increasingly likely.
Terry Wahls had stem cell therapy - it wasn’t just diet that got her out of her wheelchair and her diet, whilst difficult to follow and even more difficult to swallow (been there!) can help if you feel you’ve got to try something.
I did a similar experiment with diet and kale and whilst it was expensive (the equipment is very expensive) and awful (green smoothies are disgusting) I felt a great deal better afterwards. I wouldn’t recommend it, unless you are totally committed.
I’m a sceptic, but this just seemed to be what I needed at the time, after months of illness. I’m still a sceptic, but a very confused sceptic…
There is a condition called Gluten Ataxia. It can make MS worse and I have discovered that I can’t eat foods that contain gluten now. I feel so much better that I rarely cheat. I don’t post about my diet experiences much, as MS and diet is a very confusing issue.
Finding the right diet is difficult.
I do know that if you can, exercise is very important - it boosts endorphins and increases stamina and coordination and balance. I’m restarting my exercise programme tomorrow, little by little.
You keep hearing it, Moyna, because it suits a few people to keep saying this as part of their “anti big-pharma” stance.
The company who bought the patents for LDN announced last autumn that they were planning a Phase III clinical trial, and they are building a large plant in Central America to supply LDN at costs comparable with the off-ticket suppliers. If the trial comes good, then maybe LDN as a regular NHS treatment will possible.
The healthy eating thing is something else. There are two things to consider:
1 - Some people need a particular diet (no dairy, no gluten, whatever) and are seriously unwell if they don’t get it.
2 - There is a lot of money to be made from selling books on diets (just look at the Atkins industry).
Way back when I had my heart bypass, a cardiac nurse started to tell me all the things that I should (and should not) be eating - this was essentially the “Mediterranian Diet” - lots of olive oil, tomatoes, steamed green vegetables, and the like. She was just a bit surprised to find that we already did/ate everything that she suggested. This was not as a food fad thing, it was just that we liked what we could do with it.
Geoff