Ask for tysabri?
I was diagnosed feb 2012 and have been on Rebif 22 ever since with an increase to Rebif 44 in June 2013. I am still relapsing quite often ie. optic neuritis in january, left leg went numb May/June and now my right arm has gone funny (weak, cold, wet, sore) my cheek has gone numb and im getting electric shock pains in feet and legs. There are lots more symptoms to add but won’t get into that now.
My MRI in January showed 2 new areas of demylination since my previous MRI a year before (spine wasn’t done this time and I am sure there is new stuff there too).
So these relapses have not been that bad in themselves BUT the fatigue I get is literally killing me. I have always suffered from fatigue and get no “good days” but I am getting so bad I am too tired and weak to live. I am not suicidle, I love my life (obviously not the ms bit), family etc but I am too tired to enjoy it. My nurse says I am so bad because I am not getting any time in between relapses to recover and thats what is making me so bad. The only reason I am still here is for my children.
So 2 questions, AM I BAD ENOUGH TO FIT THE CRITERIA FOR TYSABRI AND CAN I ACTUALLY ASK FOR IT?
I know rebif was not supposed to make me feel better but I am just getting worse quite quickly.
Sorry if this is total ramblings but I can barely hold my head up to type this.