I am still in limboland and have 3 sets of MRI scans. At the last app’t with my Neuro he said he felt I was highly likely to be diagnosed with MS but has referred me to the MS specialist in my area (Sheffield) which I was happy with. I have just received a letter from the Neuro to my Dr just recapping our discussion but also states:
‘There is also an incidental finding of the presence of a few high T2 weighted foci in the marrow of several vertebral bodies in keeping with benign hemangiomas’.
The Neuor never mentioned this in our discussion so I was wondering if anyone know what this means - are they linked to MS or could I be en route to another diagnosis? They have also found 3 lesions but from googling it looks like the hemangiomas may not be linked to MS but could be what are causing the loss of sensation in my fingertips.
Sorry Emma, I can’t help but Karen/Rizzo is excellent at reading MRI and really knows what she is talking about. Hopefully she’ll read this and help. Chis
Spinal haemangioma are not related to MS. They are a relatively common abnormality of the blood vessels in the vertebrae and are generally asymptomatic so it’s very unusual to have problems from them. The fact that the neuro has called them benign means that he believes they are not the source of your symptoms.
It’s (a wee bit) possible that they could be a complicating factor though, so you should bear them in mind as you go through the diagnostic process. For example, I have a version that causes a lot of pain and muscle spasms in my back - to the extent that I had some pretty extreme procedures done to try and help (including radiotherapy) - so it can sometimes be tricky to separate out what is caused by my back and what is caused by my MS. Hopefully the MS specialist will be able to work things out though.
Anyway, don’t worry about the haemangioma - it’s not exactly normal, but it’s not serious.
