Sorry for not being around recently, but been busy now I’m back to work and was waiting patiently on my MRI scan results.
Well it turns out my MRI results were completetly normal for my head and neck, so I have the diagnosis of ME.
I’m happy with the diagnosis, but fed up as I have yet more referrals to go through, so in a sort of limboland waiting to get seen for the illness.
Just thought I’d let all of you know my results and I hope you all get yours soon too.
Tsuki xxx
Glad to hear that you are finally out of limboland and that you are happy with the diagnosis. I wish you well on the next part of your journey.
As long as you are happy (or as happy as you can be) with your results then that is all that matters! Great news! I’m getting mine on Monday week. At this stage I don’t care what they say, I will be relieved to finally know where I stand! Xx
I have been told I have had me for 13 yrs and had 2 brain scans in that time which were clear. I had another MRI last year because of vertigo etc and this one had lesions on it so I have been getting tests for ms now.
I’ve been suffering with vertigo and dizziness since October time. But I was told it’s not a neuro symptom. I’m happy. It could be worse is my view right now. Thanks for all the well wishes. Hopefully the next referral won’t take so long. Xxx
A dx of ME seems to be thrown at people when neck and head scans are normal yet they have obvious neurological symtoms.
In 1998 I was given a DX of ME due to severe fatigue and pins and needles. I gave up work as a result of the fatigue in 2000. In 2005 I then developed numbness in arms. I saw a neurologist and head and neck scans were normal as was lumbar puncture. The final story was more ME symptoms. In 2008 symptoms and fatigue stepped up another notch. GP said no need to return to neuro as last MRI was clear. Symptoms are probably ME again as thryoid was still fine, In 2009 I started to notice footdrop and GP made me feel I was imagining the symptoms. In 2011 i went back to neuro privately and a scan was done again and I had a lesion in cervical cord. LP was again clear. Well as ME cant cause a lesion he told me I had delayed radiation myelopathy from treatment I had in 1990 even though the scan in 2005 was clear. Another neuro disagreed wit
this DX and said I had a one 0ff myelitits attack. Yet this wouldnt have accounted for the years of problems.
Having read about pernicious aneamia I asked for B12 injections. WOW such a difference. I am now about to start injections every other day for several weeks as they believe I have had PA for years and as a result I have sub acute combined degeneration secondary to PA.
First symptom fatigue,
second pins an needles
third numbness
and finally if not treated early enough spasticty due to upper motor neuron lesion.
If only I had the injections years ago. The B12 tests are NOT accurate th best way to try is HAVE a trial of the injections MONTHLY at first. BUT please join the PA website an see if your symptoms fit.
Moyna xxx
Hi, best wishes to you and hoping life isnt too horrid for you. Pace yourself and rest well.
luv Pollx
Glad you have a diagnosis you are happy with and I hope things improve for you,
with love,
catherine xx