Hi all and Happy Mothers Day to all you mums on here,
I have lesions in my spine and have been diagnosed with transverse myletis. EP clear and all blood tests clear. I had a brain mri two weeks ago and went to see a neuro on tuesday to get results. I was all geared up to get news and Hubby came with me for support. Neuro started by asking general questions about my health and giving me a 'once over' (you know checking eyes etc). Anyway we asked her the results of brain scan and she said 'we THINK its all clear', hubby crossly replied 'what to you mean you THINK!!'. She said she needed to look at scans that afternoon but radiologist hadn't reported anything. She said she wont see scans untill that afternoon with consultant, she said they always look at scans after appointments?? she promised she would phone me that afternoon by 6pm. All seemed abit strange....Anyway I walked out of there happy and told friends family etc I had the all clear. Surprise surprise...she didn't phone me.
I phoned her wednesday morning, her secretary said she would ask her to phone me.
She finally phoned on Friday evening (when I was at work and not prepared for news) and said I do have lesions in brain (more than someone of my age should) and she will be writing me a letter. There will be no more tests and as I am well at mo, basically get on with life...she said twice she is NOT diagnosing me with ms.
So now i want to know my chances of going on to get MS, the neuro said my chances are now higher. Does anyone know anyone who has had these results and then didn't get MS?
I feel like I have a big black cloud hanging over me now. Feel really down and a bit stupid as have told all friends and family tests clear and they are all so happy!.
So, apart from a her being totally rubish in the way she gave me the news,