Can you please read my story and advise? My symptoms are tingling in hands, feet and face, burning pain at the back of my head, muscle stiffness and spasms, general tiredness, bumping into things, suddenly feeling dizzy and sometimes like the ground has shifted under my feet, seeing black spots and the so called floaters. Tingling, stiffness and pain has been occurring only on the right side…that was until 2 weeks ago when it started on the left as well but still most of the time the right side is affected. I’m having symptoms every day lasting from minutes to hours at a time and multiple times a day. It is affecting me very much, feels like my life has changed in the past 6 months.
It took 4 months to see neuro after GP referred me. Neuro examined me, reflexes are fine but due to my symptoms MRI was ordered over the computer whilst I was in the consulting room. I remember neuro saying brain as well as spine scans and that I would receive a letter about MRI appointment within a few weeks. I waited 2 weeks then rang the MRI department to find out if they could tell me when I could go as was worried the letter might have got lost in the post. I was on hold for a while, he said he was going through my file etc. then when finished he asked if I could go for a scan the next day. I was very surprised but of course said yes so had my MRI already. However, they told me they could not do my spine as neuro requested brain only and they suggested contacting the medical secretary for info as my next appointment with neuro will only be in November. (Neuro told me that’s the earliest possible, 4 months after this first consultation we had.)
I could not speak to the medical secretary yet. Just wanted to ask how common is it to have brain scan only and not the spine? Neuro put brain only but said both when i was there… and MRI department said the spine bit might have been simply missed from request… so I need to confirm. Also it seems weird to me that when I called and he went through my file then he asked if I could go the next day. Like something was forgotten somewhere…also when checking in for the scan, the receptionist asked for my appointment letter so I told him I hadn’t had any and that I had been invited in over the phone – he seemed very surprised and couldn’t find me in the system at first, only when he tried to look me up somehow else. Is it just me or it is weird?
Thank you for your time.