The best cookery book to get with tried and tested recipes is the Bero book, doesn’t cost a lot the recipes are bomb proof. No fancy chefs or fancy ingredients. One thing they don’t have a recipe of is cornflake tart and butterscotch tart.
But that’s about it I get mobbed if I make flapjacks.
Kay
I did try to do Jamie Olivers 30 minute meals, but failed to do any in less than 90 minutes. I have been very pleased with the Nick Knowles “Proper Healthy food”. Nothing crazy, but very tasty food without being complicated. As a committed omnivore I can say that these veggie dishes are filling and tasty.
M
thanks sue
any praise for any abstinence is very welcome.
have you been watching High Society : Cannabis Cafe?
it’s about brits who go to amsterdam for cannabis for various reasons.
there was an 86 year old lady with her grandson.
she was puffing away and giggling but she kept stating that it had done nothing for her.
there was a woman with ms with her daughter.
the woman loved it, couldn’t get enough, the daughter was worried about how her mum would walk back but mum was really well on it.
they were inhaling from huge plastic bags with vapour but no tobacco.
hmmmmm
Has anyone seen my taste,? I have four senses!! The left side of my face has also buggered off. Day 5 of a relapse. First one since diagnosis a gentle reminder from ms what a mother it can be!! I stayed at work for 3 days but I draw the line at dribbling. I’m either going to be size 8 from not eating or Popeye from steroids. I understand why but the lack of urgency around ms has surprised me. My nurse isn’t seeing me in the relapse clinic until next weds!! She reminded me that steroids don’t change the outcome they just speed recovery and there’s no controlling the damage or what (if any) residual symptoms may stay. Big pill to swallow. So I’m in relapse land… Not going to pretend it isn’t scary. Genuinely helps me to think that your all here to talk to… it’s horrible how it’s spreading down one side of my body causing symptoms and it’s stopped me in my tracks I’m so tired. It’s hard to flutter by … Xx
So sorry FB to hear of your relapse, that is bloody awful. It surprises me every time , just how scary it can be. And when I am scared one of the things I need is a bit of support and comfort from knowing that whatever happens there will be a support service to help me deal with the latest “$hite sandwich” or duff card I’ve been dealt. I hope you can keep on fluttering even if only figuratively. Sending virtual cheese and hugs.
Mick
PS even when my MS nurse could not see me quickly she knew exactly how to say it in just the right way, and I knew that she was going to back up when she could.
M
Oh you poor Flutterby. Relapses were sent by the devil to torment us. You do have my sympathy. Your MS nurse wants a good talking to if you ask me. Oral steroids aren’t a cure, that’s true, but they work best the earlier in a relapse you take them.
I’ve now got an arrangement with my GP that I can have a 5 day course of methyprednisolone on repeat and so long as I test my wee before taking them, can self diagnose. So I always have them handy. On my last proper relapse last year (I had another one but that was more sensory than motor), I managed to get steroids on day one, and the relapse responded amazingly well, remission was fast and complete.
I hope you can get steroids a bit quicker than next Wednesday (don’t forget, your MS nurse can’t write a prescription). Try getting a ‘script from your GP. It’s all very well saying they’ll just speed up the remission, but that’s only OK if it’s not you suffering!
I hope that the relapse remits super fast. Your poor wings need a nice rest. I also hope Mr FB is looking after you and mini fb is behaving nicely while mummy is poorly.
§ue x
Take care FB.
Masses of sympathy from the land of the rubber brained.
Keep calm and eat chocolate.
RF
Oh, gracious, FB! I’m really sorry to hear this. I agree with Sue - try and get a prescription from your GP rather than waiting for your MS Nurse appointment. Your MS Nurse certainly has a way with words, eh? Gain hope from Sue’s experiences 'cos it doesn’t necessarily follow that your symptoms will remain after treatment. Hope to hear that you feel a lot better soon. Hugs to you. xx
we have these major debilitating episodes and nobody does anything - when we hit a bad patch we should have access to any drugs/steroids that may help access to physio and any other relevant service. But we are left to struggle on alone. Of course the chances are things will gradually come to their senses but in the back of the mind is the worry that they may not. All things considered we’re a pretty amazing lot! Good wishes to you FB
Sorry to read of the relapse Flutterby. Whatever type of person is your MS Nurse to tell you “all that steroids do is speed up recovery”? I thought the entire reason of any DMD’s is to relieve symptoms. The sooner the better, and a speedy recovery from the relapse is surely the goal. Silly MS Nurse.
Hope you soon start a recovery FB.
Chrissie xx
FB, You have four senses? That’s four more than I’ve got.
How you feel better soon.
From everyone at Durer Towers,
Albrecht xxx
sending you virtual extremely gentle hugs through the ether.
get well soon. xxxx
FB, I sympathize/empathize over your relapse. I’ve had the problem with one side of my face not working. It made drinking very awkward and, yes, I dribbled. My smile looked strange,too. I hope that you’ll have a complete recovery.
hi again FB and also CD
bloody bell’s pigging palsy!
i’ve had it twice. the first time when i was 17 and the last time when i was 50 and going through diagnosis.
anyway my MRI must have lit up like blackpool and i was quickly diagnosed.
my mum thought i’d had a stroke so she took me to a cafe and bought me a pie (a well known cure for everything in Wigan!).
i couldn’t keep food in my mouth and it ended up burning my chin!
i was given a B vitamin but can’t remember which one.
Hmmm the left side of my face disconnected from normal control when I was in mid conversation with a work colleague, he looked absolutely terrified, and my lithpy weird attempts to reassure him did not really help.
After that relapse I decided to tell all my colleagues about my condition, one of whom said "thank fog for that, I thought you were an unusually clumsy fogger ! (maybe he did not use the term fog, but you know what I mean) This led to a relaxed fit of giggles and an opportunity to discuss some of my issues and how to cope.
Mick
I think a pie is an excellent curative for most ailments. I may have just eaten my lunch (very dull sandwich!) but I’m certain that a pie would help me today. I’m really feeling very tired / fatigued after a slightly later night than usual and slightly more alcoholic libations than normal. A pie would be just the ticket. §ue
Fatigue! Too weak & weary to lift arms up. Mr C in other room watching a match, I’m on the bed with my Kindle propped on pillows as it’s too heavy to hold today. Things can only get better eh (not really). Mick, good to read of your positive outcome once you’d explained MS to work colleagues & bosses.
take care all Chrissie x
A salutary tale there from the Head of Cheese department.
I have terrified many of my colleagues by my unusual physiognomy. They say that my mother was frightened by something during a visit to the zoo.
JP
Frightened by what? It does make a difference you know. If she was frightened by a nasty looking spider or a grizzly bear, that’s one thing, but if it was a machete wielding human that’s quite another.
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