Hello there.
Not sure if this is the place to say hello but here goes. I live in North Wales - hence the title!
I care for my lovey husband who has Rapidly Evolving MS. He was diagnosed during Covid and his health has been going downhill ever since. He also has badly scarred lungs from pneumonia as a baby and COPD so having to be on immunosuppressant drugs is a nightmare. He’s just about to make the switch from injections to infusions.
Day to day life is getting harder all the time but I want to stay patient and positive for him so I thought this might be the best place to find help and support in that - and to offer any if I can.
Much love to all.
Sarah
1 Like
Hi Sarah, I’m the one with MS (RRMS) in this family. So sorry to hear about you and your husband’s struggles and I will be very happy to provide any suggestions, advice etc on anything.
To help myself I do relaxation/ mindfulness/ meditation sessions to help deal with any stress and anxiety
2 Likes
Hey there Hank. Thanks for the reply. Funny it’s me that does the meditation, yoga etc in my family! Husband not so much. Well
not at all! Really not his bag. Shame because I feel like it would help.
Morning @shbooth Well I just wanted to say hello 
and welcome to the site. Not sure how much help I can be, but sometimes I think it’s just nice to have a place to come and chat and also get things off your chest.
Really sorry to hear about everything you and your Husband are going through, this isn’t an easy condition to live with, never mind everything else your hubby got going on.
So I’m the one with MS, SPMS, had it now for 19yrs. My hubby is my full time carer and what an an amazing job he does. I too do mindfulness and meditation, I don’t take many meds, only Baclofen for stiffness and spasms, nothing else works for me, so I use alternative ways, heat pads, cold pads, cooling towels and for me they help.
So I really hope you get the help and support you need on here, there maybe some who’d say you’re on the wrong site, ignore them, the vast majority on here will only want to help.
You and your hubby have the best day you can and take care,
Jean x
2 Likes
Hi @shbooth would it help if your husband were to see mindfulness/ meditation/ relaxation not as a lifestyle type thing but as a way of dealing with MS ? The general advice for living with MS centres around diet, exercise and relaxation- not getting too stressed and anxious.
There is lots of advice out there some less helpful than others and some best avoided when they talk of ‘ curing ‘ MS through diet.
I follow the general guidance offered through Overcoming ( as in living well with) MS. There is a website and some books covering diet , exercise, meditation/mindful ness. The ideas etc come from an Australian Professor of Medicine and I’ve been following the suggestions for years - no idea if it’s done me any good in terms of MS but if nothing else it’s kept me otherwise healthy .
Diagnosed with RRMS 19 years ago since when I’ve been on Avonex. I have some problems but nothing too horrendous: I can still walk but not for anything much more than 10-15 minutes, and bladder urgency which is a real nuisance.
1 Like
Thank you so much Jean for your reply. You sound like a very brave and positive woman. It’s lovely what you say about your husband too. I’m sure he is wonderful. Many blessings to you both xx
1 Like