Moderator note - Our terms & conditions are specific in saying the forums must not be used in this way unless cleared by the appropriate department at MSNC. It is unlikely that a high school project would meet the criteria.
However much information can be found in our vast range of publications - click on support above.
Liz (Moderator)
Hey, Ive only recently been diagnosed so for me theres been alot of sudden changes. Ive had to take a gap year from uni and have left work. Being at home all the time does drive me mad sometime but its better than going out for an hour and then being in pain for the rest of the day. Coping is hard but the way I deal with it personally is coming on forums like this and talking to people who have MS or care for someone with MS. MS is hard to explain; sometimes I would explain what MS is and how it makes mefeel 10x a day so Ive given up explaining as it started controlling my daily thoughts; making me a negative person. I just take each day as it comes and try to stay as positive as I can. Good luck with your project Ansa
I’ve also only recently been diagnosed. I try and do something every day in between sleeping if possible, like take a walk, clear out a cupboard or chat with a friend. I try not to dwell on the future, which is hard at the moment as I am still off work sick and I don’t know what is going to happen about my job due to fatigue. I also meditate every day and take pleasure in my animals. Generally I am coping well.
Hi
One of the main things that really help is practicing mindfulness meditation, as it helps with things like pain management, general wellbeing, & helping me to really savoure & appreciate things. I also try & choose things that are good for me, both physically & for my soul. So for example, I know that engaging with nature somehow is very good for me, be that listening to birdsong or growing flowers or cloud spotting. Having some sort of project on the go is good too, to have a sense of purpose. And journalling or talking with friends about how I feel.
No doubt there’s all sorts of other things that help which I can’t think of right now. But hopefully that’s been useful.
Hi I Hope your project is starting to come together. I think what you need to start off with to understand MS is to cite the different types (1) Relapsing Remitting MS (2) Secondary Progressive MS (3) Primary Progressive MS. Each of these affects people differently with different levels of severity. There is no cure for MS it is a long-term chronic disabling disease but it can be managed and that is how most people cope. I was diagnosed as a teenager and am near retirement now I’ve led a full live knowing I had MS travelled the world, worked full time, have a sucessful career. I still work but am in a wheelchair now. Some people end up in a wheelchair but not all, some have eyesight problems, memory problems, bowel and urinary problems, amongst other symptoms. How it affects a person is dependent upon where the lessions are (I have spinal lessions). I never been offered disease modifying drugs (DMDs) to slow down the progression (for your project you could discuss the DMDs as well as other treatments). I use Hyperbaric Oxygen Treatment (HBOT). You could also look at vitamin deficiency as B12 seems to be significantly low in people with MS. There are also issues with where people live as there are higher instancies in the cooler climates which fits in with the B12 deficiency theory (lack of sunlight). Other areas to consider are the work of Dr Zamboni chronic cerebrospinal venous insufficiency (CCSVI); and also Stem Cell Therapy; and diet therapies as some people cope by using these. Its difficult coming to terms with MS as the attidudes of some people is condescending especially to people in wheelchairs. So the social and psychological aspects of having MS impact on people too.
I hope this helps, Mary
I have left in place the replies you already have but please read my note replacing your original post.
Liz (Moderator)
ok i will try to
sorry for disrespecting the rules
Thank you! I would love to and hope I have sorted the problems regarding my description if not please can you tell me how.
Best wishes!