I suffer from MS and I need a strategy to cope. My first relapse was in 1979, diagnosed in 1995 but the MS did not begin to affect me until 1999. The disease has progressed slowly, I recently had to stop work as a computer consultant. Nowadays I occupy my time developing the website aid4disabled
I have SPMS and at times I really struggle. I was an active bloke, go off to work every day, walk the dogs, cook the meals, do the gardening and drive the children to their various activities – genarally speaking a doer if you know what I mean.
Now it takes me 5 minutes to walk 200 metres on a flat surface, cannot garden, cannot drive, cannot make love to my wife, cannot get the gratification of doing anything that expends physical energy.
Consequently I get so very frustrated. Most of the time I can carry on with life but every once in a while the anger and frustration boils over, the red mist descends. I write angry emails, say stupid things and this is ruining the relationship with my wife. She is the one who suffers and consequently so does our relationship.
Its not going to kill me but slowly it is stopping me doing things that I took for granted. I know I’m not the only one in this position.
Do you get cross because you are so totally frustrated? How do you cope when the anger and frustration is boiling over?