I was wondering if any of you have black holes in their MRI. I have a few of them (i don’t know how many). But i’ve never seen anyone talk about it in the forum and i was wondering if anybody has this.
From what i understood white holes are the ones who still have signals. It means they are damaged but not completely destroyed. Black holes are just too damaged from what i understood. This freaks me out as i only have had ms for two years!
That is why i’m asking a question. I have to wait two weeks to see my neuro i hope he will be able to explain it to me.
I’m sure the original posting of this has some light shone upon it but for newbies (me included) please allow me to elucidate ‘black holes’. I have just found out I have many amongst the 16 brain lesions I have.
So, a black hole is where the lesion area is very damaged to an irreversible state. With a ‘normal’ lesion that shows up white the brain can still manage something and potentially work-around the area of damage. If it becomes so damaged and is hitting a state of atrophy then it’ll show up as black especially in FLAIR/T1 scans.
The comment of finding this after two years being of concern; I’m still awaiting full diagnosis but I now know that the first signs of MS was probably 2007. I had to retire from work last year (2024) due to my current state and had my first signs of possible MS the same year (7 MRI’s a lumbar puncture and an EEG and still waiting ) My GP’s, being as they are, told me it was stress so i’ve pretty much ignored GP’s since then. Gross Pharmacists? (GP’s)
The MS clinic staff and neurologist are great, just under-resourced and rushed.
It seems that EEG’s are the way to go now to understand the damage caused in the brain and shines much more light than MRI’s can.
Happy to talk to anyone that wants to discuss this topic further from a layman perspective, of course.