So Ive had a thought and was looking for some feedback as to whether people on this board think its useful / viable and as to whether they would participate.
It occurred to me that we all have our own strategies for dealing with MS and the symptoms. Many of us have done our own research, and take a mix of meds / supplements, and have our own mechanisms for dealing with stress.
Its a black art!
So I was thinking about starting an online database which essentially kep a daily diary of:
Supplementary vitamin intake
Levels of stress
Levels of fatigue
Rate of relapse
This could, if uptake was high, and data quality was good, build a very large online resource of MS sufferers habits and be used to spot patterns in behaviour that cause relapse or alleviate symptoms.
Then, for once, we could all use this to best manage the condition to the best effect.
So what I’d like to know is, if this facility was available:
Would you use it?
What do you think would be important to capture?
What issues do you see and how should i overcome them?
What would cause you to recommend this to others?
I see this being quite a big job so would probably have to use advertising to generate cash but this would be a free service to users.