Beta interferon 1b and side effects

Morning everyone, Hope the days starting off ok for you? Just wanted to ask people experienceof beta interferon 1b and any side effects, and how long they lasted? Thanks :slight_smile: Take care x

Hi,I started on Betaferon after swapping from Rebif a few years ago and had no side effects at all,which was a pleasent suprise after the Rebif.Talk later,Dave.

Hi ya

I had flu type side effects when I was on Betaferon. I used to take a couple of paracetamol about half an hour before hand and I always did the injection just before going to bed.

Hope this helps!

Debbie xx

I have never felt so ill as the first time I took betaferon, but it gets better. That first time, I got up in the night , took ibuprofen and then ibuprofen again in the morning and then made it to work, so it was short lived. For years after that I took ibuprofen t the same time as the betaferon and then ibuprofen during the day and then I was ok. Cheryl:)

Bad side effects for a day or 2, just took some pills and went to bed. 2 years down the road I have no side effects that I’m aware of.

Wendy

x

I take beta freon and have for thelast3 years but the problem I have is my injection sites havestarted tones ore and now doing the injections have become painful,

anyone on beta interferon /should be very careful of how long they are on it //wife is 4.th person // beta interferon induced tma [complete kidney failure ] was diagnosed at age 16 now 55 took her at least 2 times a year to ubc in british columbia /now we wait for a kidney .

Dave // wife was on rebif for years then betaferon /diagnosed at 16 now 55 / long term affect for wife is /betaferon induced tma [ complete kidney failure ] she is the 4,th person in the world to get this from her medication // i have brought her to the ms clinic at ubc in british columbia for trial studys since she was 16 // it helped her for a long time 20,25 years and still helps many people to this day hope you continue to do well …peter [ waiting for a kidney know ] god she haits this dialisus shit .has to go 3 times a week 4 hour sessions at a cummunity dialisus unit 30 miles away// just venting first time i ever talked to anyone about this ,thanks for taking the time to read this / peter

I’m nearly 2 weeks post my 1st plegridy injection and it still looks like I’ve been punched in the thigh with a knuckleduster, still hot at times and burns a little if I accidentally scratch it. Not major but any advice on how to manage it second time around? Taking basic painkillers and using ice packs, would anti histimines help?

Hello I am on copaxone injections 3 times a week and it is apparently one of the safest and with less side effects. I have tolerated it very well been onit 3 years or 3 in a half years now I was diagnosed at 24 I will be 28 in july. There is a website called mymsteam all one word I have been onit few years now it’s great for us ms’ers. I did experience twice the tight chest feeling and asif someone blew a ton of smoke down my throat! But this is amedeatly after injection it’s like a shock to your body sounds terrifying. And it is but lasts a few secs or mins only happens 1 times so far to me. Now it natural it happens some people may experience it some people may not. And it’s not all the time. But its helped me. Hope this helps love

P.s some people experience flu like symptoms. Me I have hayfever an always have sniffles everyone and again. So only mild for me everyone is different love so it’s hard to tell but that website is the best for information too.