i’m new to the site and the world of MS but get the feeling this is the start of a long and loving relationship!
my husband was diagnosed with ppms last July. we’re still waiting for the follow-up appointment with neuro…or even an ms nurse to speak to…or an assessment from soc. services…or a reply from the nice man who’s supposed to be looking into why we were turned down for a disabled parking bay near the house when my husband clearly can’t walk unaided and is in constant pain…what’s with all this lack of efficiency everywhere??? feels like we’re waiting for everything all the time.
Our one success: a blue badge…yippee!
No drugs, no advice, no help, no support…PLENTY of apologies!
anyone else wait more than 3 months for follow-up neuro appointment???
i was about to apologise for ranting and raging but i think actually, it makes us all feel a bit better so i won’t apologise!
Does anyone successfully claim DLA/mobility allowance and if so, what’s the magic wand to get it? We applied for DLA but were turned down for reasons unclear. we’ve had to take out a loan to buy a car we can’t afford so my husband can drive to work (new car is an automatic…he burnt the clutch out on the old one as he couldn’t control his left leg and the car had to be scrapped).
i have so little time for all this beaurocracy…full time job, four kids, a puppy (very cute but hard work!) and a husband with very unpredictable disability.
anyone else managing to juggle everything? any tips???
rant over, thank you for reading!