Hi,
My GP has prescribed me Baclofen for increased tone in my right leg, whilst I await my much coveted neuroinflammatory appointment (lesions present in brain & banding present in CSF), but I’m not too keen on it. My wife says she’s noticed a difference in my leg spasm frequency at night when I’m resting and when asleep, but I personally don’t feel it’s doing much and I really dislike how it makes me feel. I can only describe it as an out of body like and surreal lightheadedness.
I was wondering what people’s general consensus is on Baclofen?
An other thing I was hoping to receive other people’s input on is on jerks and a feeling I sometimes get prior to them . Often but not always I feel like a prelude/warning inside before they happen. It’s difficult to explain but I can only aliken it to a feeling of like an internal pressure around the chest which travels up to my head, not a physical pain more if an intense and sudden anxiety, though I’m not actually anxious. Very difficult to describe. I was just wondering if anyone else has feelings, or signs prior to spasms, jerks or twitching?
As usual thanks in advance for any replies.
Cheers.
Baclofen is supposed to be taken in a slowly built up dosage over a couple of weeks but I found difficult in tolerating it too. Eventually settled on a low 30mg per day but found it easier to take in 5mg amounts throughout the day & night, which involved cutting the 10mg tablets in half. In fact I took 10mg on the first dose of the morning and would save 5mg for the middle of the night when I got up to pee. It does work though and have noticed more twitching when I’ve skipped a few.
Maybe that would work for you too? What dosage have you been prescribed?
I found baclofen worked to a degree, but I could only tolerate very small increasing until I got to 30mg at night. If I tried to make to increase too quickly it made me feel light headed.