I have just read a lot of your lovely posts and realised only now that I would have saved myself a lot of distress over the last three months if I had looked into the forum sooner! Do’h!
Anyways… I have been diagnosed by a private neurologist with MS last October, and have since then been on the waiting list for an NHS neurologist. The appointment is now Monday (hallelujah!), but my anxiety, depression, and symptoms have gradually gotten worse over the period of waiting, as I’m sure you’re not surprised to hear.
The reason I’d like your valuable insight is that I am worried that the doctor may not start treatment.
I have had two isolated clinical signs (numb legs in 2012 and 2014, and optical nerve inflammation in 2017) and have two lesions in my brain, one in my neck and one in my lumbar spine. I am worried sick that the doctor is going to look at this and say that either, it’s maybe not classed as MS based on the McDonald criteria, or that treatment is not required as I didn’t have two attacks in the last two years. I don’t think I’ve had any new lesions for the last 3 years or so. Lumbar puncture done in 2015 was negative.
What is your experience? I know our cases are all different, but I want to prepare as well as I can, and mention all that’s important for the doctor to make a well informed decision, and not realise after the appointment that I should have mentioned a specific symptom. Or realise that I didn’t make use of a right I didn’t know I had etc. Does that make sense?
So do you know of any rule that would help to predict if I can start treatment? Any additional information that may be helpful for the doctor to decide for treatment?
On another note - do you know if the symptoms (fatigue, tingling, tremors) are affected at all by the treatments, or are there other drugs that could help with that?
Sorry, lots of questions… thanks a lot for your help!!