Sorry to be a pain but was just wondering if anyone on gabapentin would be willing to tell me what dosage works for you? I’m 3 weeks into a relase steroids did nothing and am in the process of building up my dosage of gabapentin,I’m up to 600mg in the morning,300mg in the afternoon and 600mg at night.Other than a bit more feeling in my feet nothing else has happened yet My hands are numb ad this tight band around my ribs has been constant I know my dosage can much higher but i have 3 weeks before I start a new job and need to drive by then.So if I felt drowsy on a higher dose I’m at home until 3rd march.I don’t actually feel sleepy just a dry mouth.I would really appreciate knowing what strength worked for others
After my first relapse I was on 300 3 x daily but then I had another relapse with more nerve pain and went on the same dose as you, which generally works for me, but it did take a couple of weeks to get there each time.
I am on 600 three times a day, can’t take any more due to dogy kidneys, the yucky sleepy feeling does improve I don’t get any side effects now but the dosage isn’t high enough to take away my symptoms it’s just taking the edge off so I need something else added in I think.
Im on 900mg 3x day… do nothing for my pain and tingling/burning sensations. … my nuro doesn’t want to up it anymore… so hes sending me to pain management. . I have side effects and put on nearly 2half stone while ive been on these… Vickie x
Thanks guys I’m not feeling any relief yet, don’t think they gonna be much good for me Don’t like the idea of weight gain either but I shall plod on and hope they make a difference!
i was on 900mg, 4 times a day a couple years back. lower dose just didnt help me. i was totaly washed out with this dose and slept at the drop of a hat. weight gain was another factor also. it just piled on me.
I don’t think any drug, including gabapentin, can fix numbness. Drugs can dampen down unwanted nerve signals, including pain and things like buzzing or pins and needles. But I don’t think they can recreate signals that are missing, which is what numbness really is.
I’m just really hoping it helps with this ms hug, it’s really getting to me now after 3 weeks of constant tightness that and my numb feeling pins and needly hands! I feel about 90 ha ha
I wonder if you’re on, or have already tried Baclofen? It is helpful for spasms, and as the “hug” is caused by spasms of the tiny muscles between the ribs, might work for this.
I get the “hug” only rarely, and in fact am not even certain whether the thing I get is what everyone else calls the hug. However, I am on Baclofen anyway, for spasticity of legs and feet, mostly. It does also help with my occasional unexplained chest pain, which mighy or might not be “the hug” (sure it is MS, though, not a heart attack, or anything like that).
Could be worth a try?
Although I know it can be offputting to try yet another thing, when you feel you’re already on a lot.
I hope it helps you Marty,you’ve had it since 2011? I hope that’s not constantly! It’s horrible isn’t it?!
Tina I’ve not tried baclofen but have read about it and like you say it could be worth a try.I’m just so scared of taking anything that could affect my driving.I’m signed of sick from my current job until 28th Feb so any side effects that wear off after a few days are ok but I start a new job on 3rd March and I need to drive.I’ve regained feeling in my feet,bottom and a little in my legs but I don’t know if thats the relapse getting better or the gabapentin,it’s all guess work isn’t it?! How did you find the baclofen affected you when you first started it?
I was on same dose as you during last relapse - I could just about drive on that, never had to have higher than that that I can remember. It just about dealt with the pain if I had it with Baclofen to relieve the spasms.
Hi I found I tolerated baclofen pretty well I’m up to 60mg my neuro wants me on less but the doc thinks I need it. Suppose it’s all trial and error. I have put on weight but that more to do with my chocolate obsession since my last dose of steroids, need to think on diet again. Though it’s prob not a bad thing I lost 3 1/2 stone in 9 weeks post baby but I think it was ms and stress. Hope he get it sorted. I hate taking pills but I could eat loads just now to try and plateau things Take care em x
Thanks for the replies it’s doing nothing at the moment at a dosage of 600mg morning,300mg afternoon and 600mg at night and I don’t think its going to help me unless its a much higher dose and I need to drive so I’m weaning off it.I’m glad it’s working for you Mo and Thanks helen I’m hoping this damn relapse will leave me be in time for the new job! I hope you get sorted Em I hate taking pills but if they help then I’m all for it,looking after children is hard enough when your healthy!
Em’s reply about the Baclofen mirrors my experience. I’m one of those people who’s never had any problems with it.
I’m also on 60 mg - per day, not at once(!). My neuro also wants me on less, but GP says it’s fine.
My GP, having known me a lot longer than my neuro, knows I’m very conservative with meds, and exclaimed straight away: “But if they weren’t helping, you wouldn’t be taking them, would you? Take no notice of him!”
So sometimes, I feel a bit caught in the crossfire, between the neuro saying: “Oooh, that’s steep!”, and the GP saying: “You know best; if it works, do it!”
I do know for sure it helps, because if I ever forget a dose, I go from almost normal (no visible walking difficulties) to quite disabled. Once or twice, I’ve been quite convinced I was relapsing, before it dawned on me I’d forgotten to take my tablets. So trying to cut down is just stupid - I go from normal to can’t walk properly.
iv just come off Gaba cause of the wait gain, but because im off it just realised how much it was helping me while on it, mostly pain in legs, sitting down is agony. i was on 300 x 4 times a day, i might go back to it
My hands are numb ad this tight band around my ribs has been constant I know my dosage can much higher but i have 3 weeks before I start a new job and need to drive by then.So if I felt drowsy on a higher dose I’m at home until 3rd march.I don’t actually feel sleepy just a dry mouth.I would really appreciate knowing what strength worked for others