I was just reading a post where someone mentioned that they were going for autonomic system testing, and I wondered if anyone had been tested for autonomic dysfunction, what it involved, and also if they have any treatment for it?
I’m getting closer to a referral now (finally) as this was picked up by my balance specialist and is truly one of my biggest problems. He told me that it’s ‘not common’ with MS, but after mooching around a couple of FB forums, I’m not so sure…
My symptoms are:-
Terrible night sweats (not hormone related) and inability to control body temperature (hot/cold);
Inability to remain vertical for long (either standing or sitting - postural hypotension), palpitations/feelings of anxiety, dizzyness on standing (sometimes delayed then I feel like I’m going to black out), all related to effects on heart rate/blood pressure;
Exercise intolerance (the slightest thing can wipe me out for days and I’ve struggled in the past to get my OT to understand this but now I avoid seeing her);
I’d be interested to hear if other people have similar problems.