Have lesions in their spine only, with a clear MRI of brain? Hi, I am new here… I hope you don’t mind I joined… Not Dx yet. Had MRI of brain as I’ve been suffering from Vertigo and lightheadedness for five weeks. ENT said nothing to do with ears, nose, throat so pinned it on Cerebellum and ordered MRI, which came back “clean”. Since been to ER with symptoms of numbness/tingling/frozen feet/foggy brain, slurred speech, ataxia, blurry left eye… Which they all (all 3 neurologists blamed on an overdose of Topomax), that my regular Neurologist had upped from 200 mg to 300 mg three weeks prior. I’m now down to 100mg and will be tapering completely off to see my baseline symptoms once again without meds. Currently under Neuro care for diagnosed: Hemiplegic Migraine Vasculitis Peripheral neuropathy Also have: IgA Nephropathy At the end of April 2013, after I had Gastric Bypass surgery, I experienced one of the worst pains (even worse than contractions in child birth), out of the blue… It started in the middle of my ribcage area, just below my breast bone and wrapped around my back like a vice grip… It brought me to my knees! I couldn’t breathe! Couldn’t take in deep breaths! It seemed to last forever! Only laying down on the floor on my back seemed to ease it a little!! My husband put a cold cloth on my forbear and called the ambulance! They took me to ER and after cardiac work up and talking about anxiety, finding nothing they sent me home! Since then, it’s happened again a little more than a handful of times, each time lasting about 5 mins. A few episodes back to back, then gone. Other symptoms I have and can’t explain are: off and on numb hands/feet (started with feet way back in 2010) mostly left side is worse. Now they are freezing all the time and sometimes they feel wet like I have on wet socks(ughhh), left side face pins/needles pricks/numb at times like detle anesthesia, fatigue (sometimes very severe), burning pains down my left leg into my ankle in back and more recently in front too, severe restless leg syndrome, decreased grip strength in my hands especially left side, tested positive at hospital for bilateral Babinski and left leg Clonus… Sometimes my speech is slurred, and sometimes I get this weird, vibration feeling all through my body… So with all that said… Sorry so long… I guess I’m reaching out because my Brain MRI was clean and I’m wondering if there’s a chance they still might find lesions on my spine… If any of you were diagnosed with a clean brain scan…
Also forgot to mention that while in shower, I can feel the hot water more on the right side than the left, and I have problems with ataxia (balance) lately
New issue: went to eye Dr today, as my eye has been aching “deep” (left eye only). He did all tests including taking pics of the insides of my eyes… He reminded me that last year I was told to come back in 6 months because my left eye had had a dramatic loss of sight, but told me that other than my eye looking dry it looked fine. Then he said he wanted to do one more test. A Field of Vision test. It was like an old, boring Atari game. When it was done, I was ready to order my contacts and go home, but the tech told me the Dr. Wanted to see me again. She brought me in his office and he proceeded to show me the results of my test and tell me I “failed” the central part of my F.O.V. Test. I asked him what it meant. He said it usually meant a tumor behind the eye. I sort of laughed and told him I wasn’t worried because I just had an MRI and no tumors. I asked him if inflammation could do it, he said yes. I asked him if it could be optic neuritis, he said the beginning stages, yes… He is making me go back in one month for retesting…
Hiya,
Welcome darlin, I know limboland is a very worrying time but unfortunately until research finds out what causes MS it is something a vast majority of PWMS have to go through.
Yes you can have lesions only on your spine. Your rib cage pain sounds like the MS Hug; see http://www.ms-uk.org/symptoms
Now I know it’s called the MS Hug but it does not mean you have MS.
Optic Neuritis is inflammation of the optic nerve and cannot be seen by someone looking in your eye. The only machine that can tell this is an EEG when they do a Visual Evoked Potential; see http://www.mult-sclerosis.org/opticneuritis.html
G
Hi there and welcome,
When you mentioned gastric surgery I immediately thought B12 defiency. This can lead to all the symptoms you mentioned. Your stomach may not be able to absorb B12 and this can lead to MS type symtoms especially fatigue and pins and needles in hands and feet. Go on to the Pernious Aneamia Society and look at their symptom list.
I have a clear brain MRI and a clear lumbar puncture. I have a spinal lesion - cause unknown. But I am convinced it is the B12 as I was low and the B12 injection lifts my fatigue completely. I am currently fighting with doctors to get more jabs. People with PA seem to inject several times a week. Ionly get it once a month. I have a positive Babinski sign and muscle spasticity an foot drop in one leg!
Moyna xxx
Thank you G:) Moyna, I’m sorry I forgot to mention: All blood tests done and negative or normal including: B12, Vit D, thyroid, thiamine, CBC, Lyme… And probably some others lol
Thank you - the wet sock analogy fits me perfectly. My left leg went numb below the knee for 4 days a couple of weeks ago, and ever since that first happened it has felt like I am wearing one very wet sock!
I am very very early in the investigation route. I have been referred to Neurology, but have not received an appointment yet. I was previously seen by Pain Clinic last week. The appointment did not go well, and resulted in me calling the Consultant “rude and hostile” (he was both, I stand by my words!). However he did then decided to send me for some blood tests “to dot the i’s and cross the t’s”. So I am currently waiting for blood test results, and rather hoping that they come back with something positive! At least then I will know what the problem is and can get it sorted. I was surprised to see how B12 deficiency can produce pretty much the same symptoms as MS.
Thank you - the wet sock analogy fits me perfectly. My left leg went numb below the knee for 4 days a couple of weeks ago, and ever since that first happened it has felt like I am wearing one very wet sock!
I am very very early in the investigation route. I have been referred to Neurology, but have not received an appointment yet. I was previously seen by Pain Clinic last week. The appointment did not go well, and resulted in me calling the Consultant “rude and hostile” (he was both, I stand by my words!). However he did then decided to send me for some blood tests “to dot the i’s and cross the t’s”. So I am currently waiting for blood test results, and rather hoping that they come back with something positive! At least then I will know what the problem is and can get it sorted. I was surprised to see how B12 deficiency can produce pretty much the same symptoms as MS.