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anyone know anything about Savitex?

When I first went up to Kings the consultant mentioned the cannabis spray sabotaged. Anyone tried it for spasm relief?

I mentioned it to my doctor today and called it submitted which is a methadone replacement. Oops she now thinks I am a smack head

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I tried it a Don, it’s excellent, but very,very, costly unless you can get it on the NHS. I believe there a just a few Drs that will prescribe it ( not mine sadly) so it’s worth a try!

Nina x

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Hi Don. I’ve heard quite a few people that find Cannabis helpful for all sorts of symptoms. Some take it legally but others take the unprescribed version. I had a friend who used to roll it for his aunt who had ms, she’d have a few spliffs before bed. Bless him, he asked if I wanted him to get me a few as they helped her cope so well. Many of them rate it highly. It can’t possibly be worse for you than morphine, which I’ve been told I’ll be on for life. It might well be worth a try if you can get it.

Please let us know how you get on if you do try it. Take care.

Cath x

From what I’ve read you can get Savitex prescribed in Wales but not in rest of UK which seems nuts to me.

A French company have invented a way to inhale cannabis, but with the thing that gets you high removed, so basically like Savitex which helps pain… in an e-cig. But it’s not legal for them to send it to UK.

It seems so stupid to me that you cannot buy cannabis legally but you can go down the road and buy a bottle of booze… which is causing huge health problems in the population.

Maybe we should all move to Wales!

Anyone on here live in Wales and get Savitex prescribed?

Pat xx

I must check my stuff before posting on the kindle istead of savitex kindle said sabotaged and then spelled submitted instead of subbitex. I am now in Awe of you guys that you actually read it and knew what I meant.

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As far as I know its on prescription in Wales and Scotland, we must be the poor relations here in England cos we can’t get it (the legal stuff I mean)

WWould try it if I had a chance.

Pam x

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I wanted to try it but couldn’t get it. Actual cannabis would not be any good for work etc.

I did take Nabilone (man made cannabanoid) for quite a while but I got really forgetful if I took the full dose so I’ve stopped it and going back to Baclofen. Consultant who prescribed it said it was cheap as chips, so was happy to give it to me and it speeded up my results on a 9-hole peg test But yes, helps with muscles. Typically, it’s off-licence in England (unless you’ve just had chemo!) but OK for MS in Scotland! Might be worth asking about is if Sativex can’t be got

Sonia x

Cheers Sonia

Pam

It is only prescribed in scotland after you have exhausted every other drug since they cause me major hassle guess i will not get this

trish44

Used to have a puff or two of the recreational stuff forty years ago as a student, but can’t bear the thought of getting anything else from it now other than the muscle relaxation ( and nerve pain relief, presumably?) My head is wobbly enough these days as it is, hardly ever drink.

Looking forward to the day it at least becomes an option to us here in Angle Land.

Funding of Sativex

In October 2014, NICE (the National Institute for Health and Care Excellence) published Clinical Guideline 186 Multiple sclerosis: management of multiple sclerosis in primary and secondary care. In this, they made the recommendation “Do not offer Sativex to treat spasticity in people with MS because it is not a cost effective treatment”. NICE Guidelines apply to NHS care in England.

Despite this recommendation, specialists may submit an individual funding request (IFR) if they can make the case that the individual will benefit. IFRs are not always granted, meaning that some people opt to pay for Sativex themselves. The cost of fulfilling a private prescription varies widely depending on the pharmacy so it is worth calling around for the best price.

In April 2011, the Scottish Medicines Consortium (SMC), which plays the equivalent role to NICE for the NHS in Scotland, announced that it was unable to recommend Sativex within the NHS in Scotland as it had not received a submission from the holder of the marketing authorisation. However, an individual patient treatment request (IPTR) can be made.

In August 2014, Sativex was approved for use within NHS Wales. It can be used as a treatment for symptom improvement in adult patients with moderate to severe spasticity due to MS who have not responded adequately to other anti-spasticity medication and who demonstrate clinically significant improvement in spasticity related symptoms during an initial trial of therapy.

I copied this from the ms trust website xx

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Thanks Blossom… that answers all the questions.

Very helpful.

Pat xx

l live in England - and my GP has been prescribing Sativex for me for about 4yrs. Since it was first licensed for MS use. l did have to get the OK from a Neuro - who was all for it.

l only take it in the evenings and before bed to help with pain/spasms etc.

As the ‘Euphoria’ part has been removed - it does not have the same effect as the real thing.

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