Anyone have an additional autoimmune condition with MS?

Everyday living
1

Evening everyone

I am just wondering if anyone has been diagnosed with another autoimmune condition as well as MS ?

I have a positive PANCA which docs says is MS related and nothing to do with vasculitis. All other bloods are fine apart from I dip in an out of anemia due to poor diet and womens problems, which again they say could be connected to the MS.

I am being investigated for Endometiosis. Any other ladies have this?

Any replies would be appreciated.

Helen

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Hi there Helen,

Yes, I have Lupus (SLE) and Ankylosing Spondylitis which are both autoimune diseases. There are others but can’t recall exactly what. Hope that helps.

Janet

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Hi Janet I am rembering correctly, did you have a positive Panca too? My ana is all negative. My GP reckons hospital are just passing me around cause no one knows what’s wrong. So he gave me some ciao pram for anxiety and goodness cannot sleep with them, I shut my eyes for a minute, have really weird thoughts etc and then wake up! Had to stop them, they made me far worse Hope you are ok. Candice is back at school in a day and she is certainly ready for it! Xxx

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Hi Helen

I also have Inflammatory Arthritis (positive ANA) which is an autoimmume disease, but as yet the rheumatologists can’t say which type. I’m on a disease-modifying anti-rheumatic drug. The consultant who diagnosed me said that having one autoimm disease can make you more likely to get another.

Hope you get some answers soon.

Liz

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Hi Helen,

I have IgA nephropathy which is an auto-immune kidney disease. I am also being investigated for serum negative Antiphospholipid Syndrome which is another auto-immune disease. I have been told the same thing, that if you have one auto-immune disease it increases your chances of having another one as well.

I haven’t had endometriosis but I had its evil twin cousin, adenomyosis, which also affects the endometrial lining but rather than it escaping and causing bleeding outside the uterine cavity it burrows into the uterine muscle and causes bleeding in the muscle and then forms masses in the muscle wall preventing the uterus from contracting properly during periods and resulting (in my case) in massive haemorrages with each period.

But the adenomyosis was completely unrelated to my having MS.

Hope they sort out all the associated problems for you

B

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Yep. I had Ulcerative Colitis for several years, just after I’d gone into SPMS, and had large bowel removed and stoma formed 8 years ago. Certainly took my mind off my MS for a while. Was amused to find the initial treatment was 6 days IV Prednisolone 1000gms, the same as I’d had many times for MS relapses. It didn’t work for the UC, so permanent stoma was the only option. Were the two conditions related? No idea.

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I also have Ulcerative colitis as well as MS love Bex xxx

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Hey Bex - there aren’t many of us around with both conditions. Is your UC under control?

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Hi

Thanks for the replies, they are looking at Ulcerative Collitis because of this positive PANCA and have lots of digestive problems.

I am having a colonoscopy and also camera down the throat. Is this how they diagnosis/ rule it out ?

Thanks for all you replies.

Helen

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Hi, I was diagnosed with endometriosis when I was about 22, absolutely horrible - after some quite serious operations (reimplanted ureters x 2 and huge ovarian cyst removal) I ad a total hysterectomy when I was 30. I was diagnosed with MS last year at 44, but had symptoms for about twelve years before that. I just thought it was bad luck but wonder if both autoimmune things could be linked? Hope you get sorted x

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Helv - the colonoscopy will tell the docs if you have IBD (Inflammatory Bowel Disease) which might be either UC or Crohn’s Disease. UC affects (usually) only the large bowel, but Crohn’s can affect any part of the digestive tract, so the endoscopy “downwards” would be checking for Crohns, rather than UC. Hope this helps and good luck. B.

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Hi Belinda, no there arn’t, it’s cos we are so unique and special lol. Yeah, it is mostly had a small flare up over christmas, but it seems to be ok now, touch woodl lol xxx

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Hi

Thanks for the advice, I did have a sigmoidoscopy. does this diagnosis UC or Chrohns ? This was all ok.

Thanks

Helen

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Hi Helen. The siggy only looks at the “end” of the bowel whereas the colonoscopy looks at the whole thing. It’s good that it was OK though. I watched the screen at my last colo, and the whole of the large bowel was inflamed, so removal of the whole thing was the only option. Hope I didn’t scare you before. This was a pretty extreme case, and the op was done as an emergency -actually in two parts as surgeon was very wary of upsetting the MS. Good news is that neither op affected the MS in any way. Hope yours is neither UC nor Crohns. Fingers crossed. When do you have the tests? Binnie.x

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I go for the test in a few weeks but have delayed my op for the endiometriosis for it, what joys!

I have spent months (18) complaining about gastric issues to my GP, mainly the big C ! followed by prolasped hemorroids. I then had urinary problems, mainly urgency and frequency. I did see an continence advisor who told me that I did have a small amout od residual but blow me when I pay private and see the consultant, all issues shown on ultrasound had gone. I even questioned the radiologist, and said there must be something left and she said no. Well I am sure my GP when he gets the results will either sent me to a secure unit or refuse to see me! He has put me on four different drugs for anxiety and I canot tolerate any. The last ones were citilopram and they just stopped me from sleeping, which I dont get much sleep anyway.

Thanks for your advise

Helenx