Any comments?

Everyday living
1

Hi everyone

I’ve taken my first dose of LDN this morning & I’m wondering if anybody else here is taking, or has tried it? I’m not expecting any miracles but thought it was worth giving it a go.

I’d like to hear any comments you may have…

Rosina x

2

I tried it several years ago for about six months and it did nothing. No improvement, no adverse effects either. I was told by the LDN trust I didn’t take it for long enough, but as I was paying for it on private prescription I decided I’d spent enough. Hope it works it’s magic for you.

xx

3

l have been taking it for some years with good results. One of my pals - who also has MS - has just started taking it. She said she felt a bit odd the first few days - started on 1ml now gradually up to 2ml. She is very excited as she finds she has much more energy and improved mobility. l have told her she might not need to up the dose if it is working well on 2ml.

l am thrilled for her - she is doing things she has not been able to do for a long time.

4

hiya

it was my only treatment for 7 yrs-long story! now i have taken it along with tysabri for a year. no drug suits everyone…you gotta find what suits you. i hope you get benefit from it.

ellie

5

Thanks for your replies everyone I’ve only done three doses of 1.5mls so far, early days yet. I have to up the dose to 2mls after two weeks. The doctor advised taking it in the morning rather than night time as I take my Amitriptyline at night, so luckily I haven’t experienced any ‘vivid’ dreams.

I’d be really interested to know if anyone else has tried it.

Rosina x

6

I was on it for a year or two. I started to deteriorate a lot faster around that time and gave up on it. I don’t think it did me any harm, just never saw that it did me any good.

7

Hi Rosina

I’ve been taking it since June. My symptoms are mild and I’d wanted to take LSD to see if it made a difference, before I start to take tecfidera in November. The effects have been gradual and subtle for me; I realised I wasn’t experiencing pins & needles in my arms & hands as much, and my energy levels were good. I don’t know if it’s the result of the LDN. I take it at night and have never had any vivid dreams. I’ve not had any adverse side effects at all.

I’ve been told I need to come off LDN before taking tecfidera as there’s no data on how the 2 drugs work together…

Jane xx