I just feel so exhausted and tired and ratty all the time. I am always in some pain or the other it just seems to be never ending. I just want to scream. My 13 month old whinges all day long doesn’t eat or drink properly and never sleeps through the night. He wakes up 4-5 times in the night. I lose my patience with him and end up shouting at him. My inlaws play mind games and expect me to be there to do the cooking and cleaning all the time. I never get five minutes peace there is always someone there. My husband never goes out with me anymore he would rather sit in front of the telly. He lies to me about what he is doing that day in case i say i wana go out. I just feel so emotional fed up and tired all da time. I no longer want to make and effort with my husband or inlaws. I jus feel so alone. My MS keeps on playing up. I just feel useless
Bump.
You are not useless, you are just human! Not even a “healthy” person can cope with all that you have got going on by themselves, let alone someone with MS that’s being difficult. Do you have any friends that you could talk to? If not I would ask your GP for some counselling, you do not have to face things alone. You needs some time to yourself. You are not a machine who can just cook, clean, wash, iron, tend to baby! No person is an island, everyone needs someone to lean on, some help every now and then, especially people with our condition. You’re going to need to be a little assertive with the in laws and the hubby, this can be hard, really hard, but you need to make some demands for yourself. You deserve to be happy. Take care of you, AmieLouise
hi anon
that is the very pits to have ms and a baby who doesnt sleep.
when mine were young the eldest loved sleeping but the youngest refused to sleep and cried all night.
it got me close to cracking up but he got a severe nappy rash and my gp gave him some anti histamines, having warned me that they’d make him drowsy (hurray!!)
things started to pick up once he’d started to sleep.
meanwhile you need to get your health visitor onside.
look at your local community centre for classes with a creche. yoga class was my precious hour free of children.
if your in laws dont want to be helpful theres not much you can do about it.
however you need some time to yourself and you need some kind of social life.
if your husband refuses to go out with you then get a good girl friend to go out with and let him baby sit.
so take a deep breath and start making changes.
good luck
carole xx
Thanks,amielouise. I can’t get myself to hav counselling it would make me feel like an idiot. My mother in law,is the worst. Today i didn’t do anything i left my baby wiv hubby and i hav been in bed most of the day. Just feel like i needed to sleep.
Thanks Carole. I dnt know what else i can do to get him to sleep. I hav tried loads of things. At the moment everything is taking its toll jus one thing after another. Only my husband knows i have MS no other family and friends. Ijust feel like an emotional wreck at the moment. I was thinking of going to the GP but dnt feel like they can help me at the moment. I just need something good to look forward too think.
I didn’t want people to know but I was struggling so bad well my entire right side didn’t work I had left my husband the week before the attack. Doctors didn’t help thry said it was stress so even though my family cared for my children I was an emotional wreck I only slept an hour at night no one would listen to me and I got to get stronger my kids needed me. I couldn’t see a way out I honestly thought of running away leaving everything I was no use to anyone. However since my second bad relapse diagnosis things have been better. There are lots of good people my ex sister in law was my best friend she totally abandoned me and set it upon herself to make a cozy house for my ex. He takes my son but not my daughter she was 12 weeks at the first attack. Having people know means I’m allowed to struggle more not for my exes family but friends help when I’m out and about with kids. It means I’m not stuck in days on end. Willow sleeps at mums but son stays with me. I now have her every day and I force myself to do it I’m in constant pain but hearing her giggle and my son play with makes it worthwhile I saw a councillor I thought she was a nice lady with a box of tissues but to be honest the change came from deep inside I stopped going to her months before I turned the corner. She was just taking up yet another hour away from kids with no benefits. Saw a psychiatrist who said I’m perfectly rational and it was the struggle with physical capabilities i wS finding hard. My health visitors have been amazing there is a special crèche here that people with illness can put their kids too to give u a break or use for doctor appointments I haven’t used it but knowing it’s there is a big help. Hope you get a break soon. I know it is wrong on every parenting book but my son was like yours he would just cry and cry in his crib he ended up in a king size bed a 15 months it did help loads and he used to come through to is if he woke. I know it’s not the ‘perfect’ solution but I think you getting a sleep is more important. My son is 4 and still comes through and frankly I don’t care I’m tired and sore and need my sleep. Abs he likes a cuddle. He knows I’m ill and it scares him so if being close to me helps his fears till things are more normal then so be it. Hope any of this ramble helps x