Anxious about neuro letter -please help!

New diagnosis and before diagnosis
1

I had a letter from the neurologist today regarding my last visit, and I was wondering if someone could help me interpret some of the things he said, please.

He said “no facial weakness but less effortful eye closure”, what does this mean? I’ve been having some numbness on one side of my face but I can’t remember any of the facial tests be did.

He also said “inverted supinator jerks bilaterally” and “briskish reflexes with 2-3 jerks ankle clonus” - is 2-3 jerks of ankle clonus abnormal? Does this mean there’s definitely something scary going on?

Overall he’s put my diagnosis so far as “post viral symptoms with no hard signs of a neurological disorder”, is clonus not a hard sign of a neurological disorder then? I’ve been ill for months and I’m worried sick :pensive:

2

You’re letter would have gone to your GP - make an appointment and discuss with the GP - if you requested a copy it’s written in Doctor talk🍀

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3

Just to put your mind at ease on one issue, 2-3 jerks ankle clonus is normal. Also inverted supinator jerks are what a person who is normal has, so that sounds ok too.

But do get your GP to run through it with you.

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agreed i can never understand why the neurologist send a letter like that to the patient.

Just a cover letter i have written to your GP with my findings, and therefore would recommend you make an appointment to go through it with them.

BUT THEN, i suppose the person receiving that will think oh no what is wrong. but writing gobbly de gook is seriously not helping is it.

I would never ever try to interpret someones letter as i am not a medical professional. so i agree its better to talk to GP. x

5

I agree with Charlie, Ziola and Crazy Chick: you should really talk the findings and the letter from your neurologist over with your GP.

However, when a neurologist clearly states

it looks to me like good news. Aka, not MS and not a neurological condition.

If you still have symptoms which resulted in your original referral to the neurologist, again, speak to your GP about where you go from here.

Best of luck

Sue

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I’m still having symptoms, they’re unrelenting. I’m scheduled for a follow-up phone consultation to discuss a lumbar puncture next month, my Gabapentin has been increased, and I’m waiting for the results of an MRI with contrast after having an MRI earlier this year which showed some white dots in the periventricular and white matter areas.

I have been having terrible leg pain for weeks and now I’m wondering because of the clonus, if this could be spasticity :pensive: