Antiphospholipid syndrome (APS)

Symptoms and treatments
1

Just wondering if anyone has any knowledge or experience of Antiphospholipid Syndrome (Antiphospholipid syndrome (APS) - NHS).

It appears to be another immune system disorder that can be confused with MS and can sometimes appear alongside it.

I was DX RRMS in 2016 although my first symptoms my Dr accepted date to 2007 (although I think it was earlier than this).

I suffered multiple pulmonary embolisms in 2018 that required a few weeks in hospital and now a lifelong prescription for Apixaban.

I’d never heard of Antiphospholipid syndrome (APS) until today through a fellow MS’r but was wondering if this might be something that is related to my MS and if it is how would I go about getting it confirmed/diagnosed?

Cheers

2

Hi Cheetah

It’s also known as Hughes syndrome or 'sticky blood’s.

Like you, many years ago had many pulmonary emboli and because I had MS had the test for Hughes but came back negative, have been on warfarin for years and years.

I have heard of other people having both MS and Hughes, so it does happen.

Hope this helps

Pam x

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3

Hello

Quite often people are investigated for MS when they actually have APS. The symptoms are apparently quite similar.

Sue

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