Hi everyone
Just wanted to say how much this forum is helping me. I keep dipping in and out - it’s helping me keep my sanity!
Some days I feel like I kinda imagined the whole thing. I haven’t had any of the really awful symptoms that some of you have to put up with, no loss of strength or control and no nasty eye symptoms. The numbness and pain I had in March/April has completely gone but since then I don’t think I’ve had a period where something hasn’t been happening.
The thing is, everything that’s happening has been really mild, sometimes ‘only just there’ and very transient. It might be a vibrating on the top of my thumb on a few occasions over a few days, or persistent muscle twitches. Not constant, but in the same spot several times a day. In weird places like under my rib, near my belly button or in my upper arm. I’ve had a really faint fizzing feeling on the palm of my hand that I intermittently notice throughout the day - but again really faint, only just there, a kind of ‘ringing’ feeling after I’ve touched something. Today I noticed it on the back of my hand too. I’ve had a vibration on the sole of my foot like I’ve rested my phone against it, but that only happened once. Currently I have a fine fizzing feeling on one of my feet that I sometimes notice when walking and for the last 4-5 weeks I’ve been waking up with numb arms and hands. It happens regardless of my sleeping position but us getting progressively worse. Always goes after a few minutes of flapping like an idiot.
As I’ve had lots of ‘thinking’ time whilst waiting to see the neurologist I’m now starting to link other historical events to my list, such as loosing my sense of smell about 10 years ago. It comes back occasionally but only to varying degrees. Most of the time I can’t smell much at all. Also about 3 years ago I had a period for about 10-12 months where I kept falling over. One minute walking along and the next staring up at the sky. Very embarrassing! I put it down to having ‘weak ankles’ as it seemed to happen if I hit any uneven ground. It massively made me loose confidence.
Sorry, so having gone off on a complete ramble I was wondering whether any of this rings bells with anyone else? Also, the majority of my symptoms have been right sided but my fizzy hand and foot are on the left. Can this happen with ms or would it be unlikely? I don’t really mention any of this to my hubby as he feels that these are all things that many people experience and doesn’t think I should worry. Maybe he’s right.
Sigh…
Betty x