Further to my first post, I added another comment the other day but nobody has responded so wondered if best to start new thread?
It’s been a few weeks since I came out of hospital and following the IV steroids some things have improved - I no longer have the spasticity in my right leg, can now walk normally with it and bladder has improved as in I can now wee although it still doesn’t feel like it did ‘before’ the total retention and is a conscious effort rather than an automatic thing. This sounds really weird but I now get a vibrating feeling down below after I wee (sorry too much info and no it’s not fun!) The tearing pains in my right hip have gone.
On discharge, consultant Neuro said I would be seen in clinic for follow up in 3 months but to report any ‘new’ symptoms if they occur, and I’m now not sure whether what I’m experiencing is continuation of previous symptoms or new ones. I am now getting waves of heat across both feet and when I have a shower it is actually painful when the spray first hits the top of my left foot and left shin, these areas are very sensitive to touch and feel bruised if that makes sense? Sometimes right shin also feels hypersensitive and painful or numb and tingly, or itchy. I also keep thinking I have a fly crawling on my ankle but there isn’t!!
My eyes hurt all the time like eye strain and although I had an eye test earlier this year, I’m wondering whether to see an optician for a check up!
Fatigue is hitting me like a brick out of nowhere at random times, and the last couple of days my co-ordination seems off - I keep dropping things (although on a lighter note, hubby is not accepting this as an excuse for not cooking lol!)
My LP that I had in hospital was still awaiting some results so I’m wondering whether to ask for these too.
I’m really confused as to whether the things I am experiencing now are residual from before or are new, I have had constant symptoms since this time last year, but in different parts of body and to different degrees so no overall remittance but remittance of certain symptoms.
Sorry to waffle on - I haven’t given it all much thought recently due to other things taking priority with the kids.
The Neuro said in discharge report that ‘most likely cause is disease like MS’ but indicated that it could take a long time to be sure either way. Do LP results affect the overall picture??
Thanks so much if anyone has had time to wade through this xx
A worried Minnie Mouse