Has anyone had a similar experience or is it just me ? In 2010 on my 40th Birthday Party it attacked me without warning, so spent my Birthday in Hospital, after several MRI lumber punches etc.I went home 3 days later still none the wiser anyway cut a long story short in in Jan 2012 I developed double vison so off to Hospital we go again!! what joy.
So a prism was fitted to my glasses 2 months past I went back to the hospital or second home.Only to be told by the opthamologist I had recently been diagnosed with MS.Is this normall not to be told by my consultant.
As you can imagine I was slightly miffed allthough I did have a suspicion It was MS.
Debbie Welcome to the forum. I too had a simillar experience 18+ years ago my consultant never really said what I had just what I might experience!! It was a call from my GP who rang to ask how I’d taken the news of been dx with MS. I remember putting the phone down and just breaking down I was on my own at the time with a newborn baby and going through a terrible relapse. I rang my parents & my mum immediatley rang the doctors to find out if what I’d said was true, my GP rang again and asked me to go straight down to see her. I have to say she was absolutley wonderful and so full of remorse and still to this day she’s brilliant and always goes that extra mile for me. The consultant retired not long after and I now have the best Neuro ever again another female who always goes that extra mile for you. Hope your not too distraught at finding out how you did, and once again welcome xx
Simular story, after a series of symptoms over a period of 18months including bladder problems. After the usual tests I was alocated a continence nurse to help with using catheters. I also suspected MS.
After quite a few visits from the continence nurse she just asked how I and my family were coping with my dx, what dx i asked.
she confirmed that I had MS. It seems that it is the norm???
Sorry to hear you’ve joined ‘the club’ but you will find it jolly useful. I attend Moorfields Eye Hospital on a regular basis and in 2007 on the letterr they sent it said ?MS. But nothing at all was said to me. It wasn’t until 2011 that a neuro informed me that I had spms. I by the way never suspected for one minute that I had it. Hope all is well with you.
Hello Debbie, last year post all the tests with me a letter was written by the consultant here but was not actually sent. Knowing the system I booked a follow up appointment with said consultant. He was suprised because it was at a totally different hospital. He presumed the letter had been sent so launched into the whole discussion on DMDs and coping with your MS. Fortunately I knew the diagnosis was coming. He apologised about the missing letter and was a bit annoyed that the letter (apparently) had been written by him but had not been processed.
The thing is, bits of information do get lost along the way, but invariably it is the important bit! Why? I have no answer to that but it happens to a number of ‘presumed you knew’ cases.
Wow what a response ! Can I thank you all so much for the feedback.
Phew !! It’s not just me.
I have allways thought (yeah I know that is dangerous !!) that there is alot worse that can happen and there are people a lot worse than myself .
My MS nurse is fantastic but as for my consultant hum ? I am currently recovering from a monumental relapse & currently been off work for 3 months ( there is only so much day time telly that I can stomach he-he ).so on a more serious note now drowning in debt & not entilted to nothing !
I would have been back to work alot sooner if my GP had given me the right dose of steriods !! don’t worry I have complained.
Thanks again I will keep you all updated on the complaint.
It is so nice to hear such sincere comments & I am glad to be chatting to people that actully know what I’m going on about !!
Good to know it will get eaiser.
I also urge everyone to send e-mails to number 10 ref the benifit system you will not get a reply but it’s good to keep hassling him! It makes me feel so much better ? he-he
xx