Diagnosed in May 2015. Three episodes of partial right side paralysis in as many days. The last one being the most severe and lon lasting, on a Saturday morning. This saw me in an ambulance to A&E, a barrage of tests, MRIs, Cts, bloods etc. Admitted to a ward end of day and still paralysed. Having lost a sister to a brain tumour, that thought had crossed my mind briefly, but decided it was all too sudden for it to be a possibility. I wasn’t unduly concerned to be honest, more puzzled I think. Various teams of medics came and asked questions, did physical exams etc
Monday afternoon the ward consultant that I had met on admission came to me, sat on my bed with a trainee and a nurse and asked me if I was familiar with the condition MS. Multiple Sclerosis? I remember nodding dumbly as he told me this is what I have. He told me, reading the mri report, he was 99.9% certain it was MS, but the Neuro would see me later and she would confirm. He rambled on about two white plaques being visible, as he touched the top of his head, telling me there are many types of ms and “one size doesn’t fit all”, to believe in positive thought. As my tears welled up, he asked if I had any questions. I managed to get out “too much to take in” and shook my head. Thanking him! Thanking him for giving me this earth shattering information!!
The nurse put her arm around me and asked if there was someone she could phone. I told her my husband would be visiting shortly. She felt that was wrong, to tell me without anyone being with me for support. I dryly told her it wouldn’t have changed anything. Asking me if I wanted her to stay or leave, as my crying really began, I had to insist she left me, as I waved her away. I was acutely aware of the voices of visitors at the nearby beds, outside my cubical curtains, their chatter. The tea trolly rattling along. I thought how it felt when, in the past, I’d experienced a bereavement. The death of a loved one, my father, mother, sister, grandson…the world doesn’t stop. People carrying on as normal, walking, eating, talking, just living their life while I felt mine had almost stopped.
My Neuro came to me at 8pm that evening. As she introduced herself, she did a quick physical exam and said there was no doubt it was indeed MS.
Friday, to my knowledge, I was fit as a fiddle. Monday, I have MS. And the rest as they say, is history…