After waiting another 9 months, I at last went to see my neuro with the hope of moving forward. I’m still undxed after 6 years.
(Last time he said I have spastic paraperisis and my condition is with ms or HSP and we may never find out which one of the two I have)
He’s now backtracked on all above.
He done a half hearted exam, and basically told me he can’t find enough evidence so he is referring me to his lead consultant, who is an MS specialist, (so is he) even though he thinks ms is now unlikely through lack of evidence. And HSP is unlikely as no one in family has it. Confused!!!
My last brain scan was 2010, (clear) LP & spine scan 2011 (clear) my symptoms have progressed quite a bit since then and I’ve had to give up work. I’ve had a permanent headache for the last 6 months and doesn’t think I need another MRI! I disagree! He keeps telling me I have chronic migraine. This pain is not migraine type pain but he’s not listening. My legs and walking have also gone much worse!
I’ve just got to now wait and hope the next neuro looks at me in a new light. Why would he send me for a second opinion? Do you think the new doctor will start his own new investigation on me or simply confirm what this neuro is saying? I.e. no evidence to DX me with anything (other than chronic migraine and chronic fatigue)?
I hate neuros 's right at this moment!