i have a working diagnosis of MS. I recently went to see my neurologist to get the results of a head and neck MRI. Both were clear which was quite a relief, however my neurologist was awful. He said three times during my consultation that I should get a second opinion as unless there is something on the MRI he wasn’t particularly interested! He also said that as a lot of my symptoms are sensory it wasn’t “his” sort of neurology and although he could do other tests and investigations that wasn’t his thing. He just told me to live my life (i wish!!) and go back in November to see how I am. He said that my tingling, numbness, buzzing and tremor weren’t consistent with MS.
I realise if there is nothing on an MRI MS cant be diagnosed and expected it to be honest, as two people I know didn’t show lesions until their third MRI - but his lack of compassion, sarcasm and lack of interest in investigating what the hell is wrong with me was awful. As i walked out he said “there are thousands of people like you walking around undiagnosed”.
I am currently in Spain on holiday and have an appointment with my GP when I get back, so will ask him if he thinks another referral would be best - he said if my scan was clear the neurologist would send me for Lp and Ev’s!! I have also decided to ask him to test for RA, Lymes and anything else he can think of - even if its just to exclude them!
i just wanted to rant really as being here in a lovely villa is relaxing and helping me chill but giving me lots of time to think! Any thoughts or advice would be great.
Thanks. Carrie x