I started to reply to you last night, but got a bit overcome with tiredness and gave up.
I think you are dealing with your diagnosis really well Sarah. Don’t expect that you can be diagnosed with something like MS and you can immediately get over it and be positive.
You are going to have wobbles and your first potential relapse after diagnosis is scary, because you now know what can happen. If you are having a relapse and you’re on a DMD, then maybe that drug isn’t doing what it should be. Then again, some DMDs do take a while to really start having an effect on you.
Meanwhile, get your GP surgery to do a urine specimen check, to make sure you’re not harbouring a UTI. Sometimes a urine infection can look like a relapse. You should be able to phone your GP, talk to the receptionist and arrange to take a sample in in the morning (it usually has to be the morning because the samples have to go to the lab if positive).
If however, it is a relapse, get your GP to sort you out with some high dose steroids, the sooner the better (after aforesaid UTI check that is).
And don’t expect to be all positive all the time. You’re allowed to be upset, scared, angry, whatever you feel is appropriate.