Just thought id share and ask others how they manage life with ms. I was diagnoised in october after my first attack where I couldn’t use my left arm and hand. This resolved but the fatigue was
Awful. I then had problems with both legs, and couldnt walk from one room to the next with pain and at various time limped in both legs, had spasms and toes moving independently, which was very werid. I had
a new mri in january which showed that there was no enhanced lesions and that that some of the lesions were less conspicuous, so my neuro said I hadn’t relapsed again and that he thought these issues and pain was physiological…which I didn’t agree with. I had cbt and my therapist after 2 months of meeting me has written to say this isnt health related anxiety at all. I saw a 2nd neurologist who thought id had 2 or 3 relapses. Im due another mri in july to then discuss dmd with my neurologist.
I finally have the pain under control and am almost back to normal. We have tried to change our life style, im now not working, my husband has changed jobs to be more local. We have got a puppy ( I said to my physiologist that I would get a dog and walk it). We are getting our house fininshed and we are making sure our children are getting the support they need after not beeing able to do much with them for months. Im now feeling that im very Lucky to not have any major symptoms left. I still get tired, hurt and have sensory things but I can live day to day and I sometimes feel happy and then I remember. My husband is great but wants me to live day to day and not worry about the future but ms comes into everything and sometime I just think im in self denial abit and hoping it wont happen again. I know it will and this is such a scary place to be in, I cant cope with the fact that im just going to get worse and worse and not be able to function as a mother in the same way i do now.I look at all the reasearch and i am looking at all the trials, diets , vitamins etc and trying to do everything to help myself but at the end of the day there is no cure. Im trying to enjoy everyday but im more appreciative of each day which is different to enjoying each day and being happy. Do others struggle with this feeling and how to you get though the mental aspect, knowing you are going to lose more over the years and not knowing if its tomorrow or in 2 years time… in one breath I feel thankful that im ok at the moment but in the next breath knowing it won’t last. I lost alot for months and I dont want it again but I know it will…help.