Long standing MS diagnosis of 16 years (relapsing/remitting) and have been having one relapse a year on average. Symptom management in between times. No ongoing treatments.
My recent blood results show that I am anaemic. My blood level is 10 (should be around 13 apparently) and I am waiting to see my GP to see where to go from here. However I have been reading about the CCSVI testing and the iron levels in the brain worsening the MS. Not sure how all that pans out. Any information gratefully received.
Dont write off any treatments or tests out their, do lots of research on them. Don’t go by one person saying not to bother. Iam sure their are people theese treatments have helped.
Thanks for your posts. I am to see the GP on 3rd Jan for iron supplements. I am interested in all new developments and researches, and don’t rule out anything. What works for one person may not work for another. Not looking to have any invasive stuff done though. Between cost and possible complications afterwards, I am not sure that it would be for me.
Having been feeling rough and assuming it was just the MS again, I was surprised to find my iron was low. At least it is something I can take a supplement for and improve how I feel.
Had a great Christmas and looking forward to the New Year.
Hi there I have the same problem too. Doctors think I may have either stomach ulcers due to long term use of steriods, and also some in ibuprofen. I tried iron tablets but this do not help as it upset my stomach and added to constipation. He has now prescribed some power which I mix to drinks, starting them tomorrow. I have been low on iron before and I have been feeling ill for a while but did not give it a thought. Going to make sure I get a well balanced diet from now on. What were your symptoms? I get restless leg syndrome, shortness of breath, dizziness and random pain. But it’s hard to know which is MS Hope you feel better soon Helen