Hi everyone, I’m not diagnosed with anything yet but would very much like your input into my symptoms. My history is
10 years ago I had numbness and pins and needles on right side which lasted for 4 weeks, some days were worse than others. I was admitted to hospital and had a CT scan which was negative. The medical consultant said it was migraine as I was too young for it to be anything else ( I was 29)
Over the years I have had sporadic tingling mainly affecting right side and also right arm jerks.
Progressive lack of balance particularly in dark. I feel like an old woman if we go out in the dark as I cling on to hubby for dear life, this would be amusing if not so scary!
Restless leg syndrome for at least 8 years.
I have had intermittent tightness around lower ribs, particularly on right side. This can last anything from a few hours to several days. I had exactly the same pain during my caesarian section which was truly awful. The spinal anaesthetic didn’t touch it. The anaesthetist said he thought it was some kind of neuropathic pain. My GP couldn’t find any cause for the pain so put it down to irritable bowel.
Last year I had neck heaviness and a feeling of pressure at the base of my skull. This lasted about 4 months then improved on its own although my neck still does not feel quite right. I also had weakness and trembling in right hand.
In September this year my right eyelids (upper and lower) started twitching constantly. I had a strange sensation on the bottom of my right foot. It felt like there was something stuck on my foot but there was nothing there. The weakness and trembling in my right hand returned with a vengeance and also included my forearm. I had a vibration type sensation in my right arm, and it was only bearable if I held my arm across my body. I could only have a drink using my left hand. Awful heartburn which I have only ever had during pregnancy. Feeling off balance more than normal, I fell over turning a corner. Pins and needles but on the left side of face?? (other symtoms have been on right) Right leg felt incredibly heavy, people asked why I was walking strangely. I just said I must have slept awkwardly. Driving became very difficult. I became very good at not seeing people or declining drinks when offered. I planned my housework etc so I could rest before collecting children from school, but was going to bed or falling asleep by 8pm. My bladder control seemed to alternate btween the frequency I was used to to not really feeling any urge to pass urine.
After the fall, and because I have a two year old at home, I decided to go and see the GP to tell him all that had been going on, and he referred me straight away to see the neurologist.
I haven’t told anyone other than the GP what is going on, and even hubby is not fully aware of the extent of my symptoms. I don’t want to worry anyone when there may be nothing to worry about. I am awaiting an Mri as I apparently have brisk reflexes on right side along with some muscle weakness.
Anyway last week most of the symptoms I have had since September seem to have all but disappeared, but they seem to come back a bit if I do much housework etc. My right arm still feels a bit weak and my right eye is still twitching.
The odd thing is I now have something new. When I get up in the morning my calves feel really tight and painful and I have tingling in my feet. This eases after a couple of hours.I have not heard of this as a symtom of MS, does anyone else have this? Also do you think my symptoms could be due to something else, the neurologist checked for vitamin deficiencies and all the blood tests came back normal.
Sorry this is so long, but as no-one else knows about this I really appreciate the chance to offload and ask questions.
Thanks everyone x