I had an episode of Optic Neuritis about a year ago, and then a few months later I had tingly feet for about ten days. I eventually managed to see a neurologist at the start of the summer, and he said that the feet thing could well be a symptom, but he wasn’t prepared to classify it as one because “it’s usually hands and feet at the same time”.
I had an MRI scan shortly after seeing the neurologist, and got the results in early September (very long wait…). The neurologist told me the results were “consistent with MS” and that “according to one study, there’s an 80% chance you’ll develop it in the next ten years”. But he said he couldn’t diagnose me with anything until I had more symptoms.
Everything then went quiet for a few months, apart from a seriously weak bladder (which I’ve had for ages so could be unrelated). About two weeks ago I noticed that my right side had gone a bit numbe, from just under my chest to the middle of my thigh. Not completely numb - just very reduced sensation. I phoned my GP (I’m studying in a different city to where I’ve been seeing doctors), and she said to call her back if it persisted. Again, she said she wasn’t sure as it was “usually the extremities”. I haven’t managed to speak to her, despite calling her back, but hoping to tomorrow, although I know she won’t have much useful to say, because it’s not her field.
Now, as of today, I have a weird feeling in my right hand and foot - not sure how to describe this really other than a sort of thickness/stiffness. When I press my thumb against my index finger it feels very strange.
So my questions are:
Was the neurologist right about the foot-tingling? Is it usually both at the same time?
The bladder thing - could that be a symptom? I need to go to the toilet way more than other people it seems, and often I’ll go but still have a sense of needing it, which matches things I’ve read. However, it’s quite ongoing, rather than episodic - is this normal?
Is my GP right about it being in the extremities? Have other people experienced numbness in the torso area?
I’m pretty sure I have MS - the scan, plus the ON and all these other things would be too much of a coincidence. So will I get a diagnosis from the neurologist now? And what would a diagnosis even mean? Should I pursue that?
Anyone who could answer any (even just one!) of these questions would be very much appreciated by me. I’m feeling quite scared about the future, as well as confused about the medical advice and information I’ve been given, and while my friends are reallys upportive, they obviously don’t really know what to say. I’ve never posted on a forum before in my life so sorry if this is too much! Hope someone can help xxx