First time poster after just joining, you already know why I’m here…lol
I’ll try to give you a brief run down of what going on (if you’re interested). Initial symptoms started 4 months ago and left me feeling constantly exhausted with little power in my arms and legs, this quickly progressed to walking with a limp in my left leg after the first month. I then noticed that I was getting a lot of cramp and spasm in my hands and general twitches in the arms and thigh muscles followed by a nasty experience with double vision for about 6 hours one night at work. This is when I went to my gp initially, she suspected RA and referred me to a rheumatologist. I saw the rheumatologist in March he pretty much immediately discounted RA as my bloods were normal, I was sent for an MRI on my lumber spine to look for trapped nerves as the walking was steadily getting worse, he told me that he wanted to rule out MS and thought the problem was nerve damage in the pelvis. That MRI came back clear.
In the time leading up to getting those results back my walking progressively got worse to the point now where it takes me around an hour and 20 mins to walk a route that took me 20 mins four months ago, this again made me go to the GP, she sent me for another MRI on the cervical spine thinking that I had possible myelopathy again this came back clear apart from a little lesion on the spine!! During this time my balance has got worse, dizziness is pretty much a constant now, my left ankle won’t move and I’ve been off work for 4 weeks. I’ve experienced hot flushes, pins and needles (like a constant low voltage shock) in my hands, feet, face, lips and tongue and I’m always exhausted.
I’m sure I’ve missed some symptoms out but I won’t bore you with the rest anyway the GP has now told me she suspects MS and I am now waiting for my first neuro appointment on June 13th in Wolverhampton & from some of the posts I’ve read I’m thankful that I have only had a pretty short time to wait for that.
I’ve got a couple of questions and would appreciate any replies;
1: What should I expect from my first neuro appointment?
2: Do your symptoms seem to change from day to day like mine do? The walking issue is now constant but the severity can change as well as my gait. The pins and needles are always there but can be in one place or another. Is this a ‘one day at a time condition’?
If you’ve got this far thank you for reading and I’m guessing you know full well how frustrated I feel. I really would appreciate any advice, info, links or tips.
Thank you in advance