Altered Sensations and living with it

Everyday living
1

Enough already. i need to put my heat pad on as i get bad back spasms, so last night within seconds i had them the creepy crawling things, the invisible itching, lice in my hair, legs on fire all of the ones below. I can barely touch my skin without it setting off an itch i have scratched my face raw in places, and my legs.

I ended up turning off my heat pad and within a few minutes it all started to calm down again. Then the back pain started.

My altered sensations have been running riot lately the worse ever i am sick of it. How could something like an invisible itch drive you so nuts. Does anyone else get it i read that its a lot more common and can be the first symptoms of MS. I need to see my neuro i think i have been avoiding it since i was diagnosed feb 2016 finally after 10 years with PPMS.

Any suggestions on how i can deal with it? I might have to put gloves on lol, as my poor face is sore with scratching.

  • Burning
  • Tingling
  • Pins and needles
  • Crawling
  • Numbness
  • Prickling
  • Sensitive skin
  • Stabbing
  • Itching
  • Tickling
2

Have you tried to put something cold on rather than heat.I have a gel pad thats cold and put it in the fridge to cool it even more and i find that helps my burning feelings and pain and spasms.

1 Like
3

Hi crazy click what do they give you for a pain med all these you describe they class as Pain I have had them all to

I take tramadol and pregabilen whitch keep it under control most off the time I also take clonazapam for night spasms but

Only when things are bad that stops it even the dancing ants

4

Have you tried antihistamines for the itching? I know the itching isn’t an allergic reaction but I sometimes have hot itchy hands or feet. Scratching or rubbing doesn’t help to stop the itch, but an antihistamine does. It’s counterintuitive but it works. I take loratadine, Tesco’s own brand. Try different ones to find what suits you.

The only burning sensation I have is when I touch the area above my upper lip. That may be a side effect of Gilenya. Either way, it’s mild enough to ignore.

5

Or Amitriptyline for the burning / pins and needles.

Sometimes it’s a case of trial and error, what works for one person won’t work for the same symptoms on the next person.

I know people often try to manage without drugs, but honestly, if the altered sensations are this bad, you should think about trying to see if you can sort something out.

And if you are already taking a drug for the symptoms, it is perhaps time to try something different.

Sue