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Alopecia and MS?

I’ve had Alopecia universalis since I was 12 (I’m nearly 30 now) so since I was young I have not had a single hair on my head or body. I lost all my eyebrows, eyelashes … Everything! Although a big shock at first, I am now totally comfortable with my Alopecia and I understand that my immune system attacks my hair follicles, not allowing me to grow any hair. The strange thing I’ve found is over the past 8-12 months I have started growing hair! I’ve not had a single hair on my head or body in over 18 years and now all of a sudden I have eyebrows, eyelashes, under arm hair (not liking this lol) and a little hair on my head. Do you think it’s possible that if my problems are due to MS and I have had a relapse, that maybe my immune system has been drawn to attacking another part of my body (for example my brain!) and so my hair follicles have been given a break for a while? Sorry if this sounds stupid! It’s just you don’t know how weird it is for my to suddenly be growing hair after all these years . Would love to hear people’s thoughts on this :slight_smile:

I have absolutely no idea if it could be related, but you’d have to think it’s a whopper of a coincidence if it isn’t!

I don’t think the immune system works like a physical army in that I think it can be everywhere at the same time, but perhaps whatever’s causing your MS-like symptoms also causes hair growth or perhaps it has caused a change in your immune system?

Please let me know what the neuro says? I’m fascinated!

Karen x

Thanks for replying :slight_smile: I’ve been pondering it for a while! It’s not so un usual for me to have any hair lol Ill update after I’ve seen the neurologist on Monday. I’m so nervous! On the one hand … I don’t want to be wasting his time and I don’t particularly want a diagnosis of MS but then on the other hand I’m dreading he will say something crazy like this is all in my head and there is nothing wrong. Basically, I know my body and I know I’m struggling … I just want to know what’s going on so I can get my head around it all and make sure I’m doing the best I can by myself.

Hi Emma,

My wife has Alopicia a while back, it didnt effect her whole body though just her head and she had the biggest fryer tuck patch, (we laughed about this). Glad you are able to deal with it, it took her a while as she always loved her hair.

My opinion and after seeing a specialist in London, it is possible that with Hormone changes (not knowing how old you are though) I think every 5 years things change, Also stress is a huge factor, It could be a mixture of things but your right, if your immune system is now fighting hard on something else it may well be.

Good luck and let us know, as for your Nuro appointment, just be prepaired with questions you want to ask.

[quote=“rizzo”]

I have absolutely no idea if it could be related, but you’d have to think it’s a whopper of a coincidence if it isn’t!

I don’t think the immune system works like a physical army in that I think it can be everywhere at the same time, but perhaps whatever’s causing your MS-like symptoms also causes hair growth or perhaps it has caused a change in your immune system?

Please let me know what the neuro says? I’m fascinated!

Karen x

[/quote] I’m fascinated by this also. Lets us know whet the neuro says, Emma.

I had alopecia when i was a child. My dad was killed in a road accident when i was 7 years old and then my hair problems started. The alopecia got better after a couple of years but now i have MS! This subject has come up on these boards before but it was so long ago for me that i’ve never mentioned it to a neuro.

I seem to be following all your posts today Emma - sorry! LOL! I am not a weird stalker - i promise! ha ha!

Teresa.x

I don’t think your a stalker lol I welcome everyone’s comments and advice :slight_smile: I’m def going to ask the neurologist about this one … Doctors say Alopecia is caused by stress but I’m just not convinced fully. I’m very happy to lucky and positive and I don’t tend to get too stressed about things to be honest. Ill keep you updated! I may need up with some more tufts of hair at the end of all this LOL … See , I’m always trying to be positive :smiley: x PS - Tom C I’m thirty on Monday :slight_smile: