Ok, a bit dramatic but anyone else feeling like the life they used to have is gone? Diagnosed in 2007 with RRMS but in the past year or so confidence has gone. Trying to carry on as normal but the old me seems to be gone. I realise it wont come back but i need to find a social circle. Going to the pub is near enough a no no. Went to the pub last night, can remember everything but legs not playing fair. Has 6 beers, watched a football game got a taxi, then it all went to pot. Foot caught the door frame so fell out. Total idiot, that i am,then got a pint of water and tripped up the stairs. Banged me head up pretty good but i dont want to put my wife through this as i feel like i am pushibg her away. Can kick the drink easily (my biggest addiction is coffee) but any tips on how to nake new pals would be greatly appreciated. Feel like a total prat, i am a member of the local gym but the cocky me is dead and feel like a new kid in primary school again.
Sorry for the rant just need to talk to somebody who understands, and doesnt judge me (i beat myself up enough as it is)
Cheers Bouds, feel like such a fool. Wife is not best pleased with me, and to be honest i dont blame her. Annoyed at myself, so decided to stop drinking as it doesnt work to well with ms. So christmas is ruined and all my doing was fine then drop foot (bloody nuisance) the taxi door so made a rather ungracious exit. Then drop foot going up the stairs, fell up the stairs then fell back wards. I am not saying drink wasnt apart of it, so have said to my wife thats me off the booze for good. Have done sober october numerous times… just going to keep it going. But you have it a lot worse than me so i should be thankful for small mercys. Jesus? Go to church already. 44 and doing walking football (yeah am still rotten all i had was energy) just need to find a hobby. Cant play golf as a i wasnt very good to begin with and certainly cant walk that far now. Carpet bowls looks like the only option where i live. Sorry for babbling a lot of crap
Where’s Jean gone… I don’t know, the fun loving woman who liked a good time…gone, the woman that loved to keep herself nice and trim with lots of exercise…gone, who loved her job…gone, finished working at 47yrs, that when I was dx’d with SPMS, straight in at that, I’ve a whole host of things going on, so I won’t bore you. I thank God for my amazing hubby, who is my full time carer, my best bud, the love of my life, been married nearly 43yrs, been together 46yrs, without him I’d be nothing, but I will also give a BIG shout out to my family and friends, the people who stick by me no matter what and listen to me no matter what, they have never given up on me although at times I’ve been hard to listen to and understand. So how do I carry on, because I’m bloody stubborn and I still love life, even though its a smaller world now, I still love it.
Merry Christmas and all good wishes for the New year.
Jean
Lol, right attitude there. Its just hit home last night, that drink, ms, drop foot and balance issues are not a good combination. The only thing i can control is taking drink put of the combination. The younger me would laught at me but its no a biggie
I still enjoy a glass of red, me and my hubby sit with a glass and talk things through, some MS stuff, but just general life stuff, we laugh, cry, we enjoy, its a shame to give it up all together, but if you feel you have to, then so be it.
Jean
Paul,
just read your post there and I know you are feeling rubbish just now.
Sometimes we feel that we can kinda do what was always our “norm” but then something rubbish happens that reminds us we can’t.
I have had ms for 14 years and this past year I really know I have it and I have had to change a lot and have adapted as best as I can(not always easy).
Try not to beat yourself up but just focus on what you can do and not what you can’t.
The great people on this site have always been there for me whenever I reached out. I am not always on but dip in now and then.
Take care Paul
Mary
Thanks, just dont like the impact it is having on me and my wife. I get angry at myself for dropping or bumping into something. My wife hates the way i get angry at myself but way i see it it is angry at my ms. She thinks that is unhealthy
I totally understand the anger response, I used to fume and state that if I had a chainsaw I would cut my flipping leg off. I even named my MS so that I could direct my anger. My wife got really upset about my anger so I knew I had to do something about it. I spoke with my MS nurse who explained just how much precious energy I was wasting with my pointless anger. This was a lightbulb moment for me. As soon as I taught myself to recognise the trigger and to consciously choose my response, I had loads more energy to use for the good bits. I do still have the odd rage and rant, but I choose when and how long and then get back to the good stuff. I am not being flippant or saying it is easy but in my opinion well worth the effort.
All the best
Mick