Hi i am undx at present but am just wondering as the title says, what ages people were dx and with which
type of MS. I realise this is quite a personnal question so annonymous replies are fine.
Just being nosy really, I’m 36 and awaiting an appointment on the 16th Oct with an MS specialist at the QE
in Birmingham.
Sonia x
Hi Sonia,
I was age 43 when diagnosed with RRMS
Jools
X
Hi,
I was diagnosed with PPMS a year ago tomorrow. I was 45 at the time.
Sarah x
42 ,RRMS though had first tests at 20 when what we now know is the hug, was treated as asthma or anxiety. Chis
Two years ago, with RRMS. I was then 44. I’m guessing perhaps the thinking behind your question is whether you are too old, at 36, for RRMS, and whether PPMS is more likely.
Although it’s true that PPMS, on average, tends to have later age of onset, it doesn’t mean people diagnosed later in life will always have PPMS. As you’ll see already, from the replies, many of us were diagnosed with RRMS well into our forties. I know there are at least a couple on this board who were Dx’ed later than that.
So 36 certainly doesn’t mean you’re automatically looking at a PPMS diagnosis. The best guide is not your age, but the pattern the disease has taken so far. If you’ve had distinct episodes from which you’ve recovered - wholly OR partially - then it’s almost certainly RRMS.
If you’ve never had a discrete attack, but just been getting gradually more poorly from the start, it’s more likely to be PPMS.
Oh, and PS, I don’t think it’s a personal question at all! Considering it’s not unusual to discuss sex or toilet problems on this forum, age at diagnosis (or age now) is not going to be a sensitive topic, for most.
Tina
x
44 and RRMS. I am convinced an attack in my 20’s was the start though but the neuro then said it was chorea (st.vitus dance)
Pip
Diagnosis November 2011 of RRMS at just turning 40. Had a previous turn aged 37 then 39 fell over so found out the diagnosis by accident!
Hi, like you I am still awaiting a dx.
But my PPMS like symptoms started when I was 45. I am 60 on Monday.
In 2003 I was told i had 95% liklihood of PPMS.
That lasted 7 years, then some waste of space neuro changed it to HSP. That was squashed a year later.
Still having tests.
luv Pollx
Hope you have a wonderful birthday weekend Polly!
Diagnosed at 38 with MS no one has ever told me what type but as I have had relapses I assume it is either RRMS or PRMS (Progressive Relapsing MS)
Hi there I had my first symptoms when I was 19, after tests, was dx with rrms age 21. I’m now 35. Jo xx
Dx in Dec 2011 - I was 46 at the time. It is PPMS. Teresa xx
Dx’d as RRMS when I was 33. Still RRMS now, at 47.
Karen x
Thanks guy’s, i’m not sure if the extreme pains in my neck/shoulder are a definite relapse or more so
ongoing but more painful at times if you know what i mean. It never really goes 100%.
Shakey weak right arm and leg also seems to come and go but never fells 100%.
First symptom last yr lost feeling in left of face for about 6 weeks. TN pains on and off too!
Thanks again sonia x
Hi there
I was 32 and RRMS that was 6 years ago and ive still got RRMS so im told
Sharon
I was 33, rrms.
I am 41 now. I am still rrms.
I’m not much different tbh.
Teresa.x
Hi Sonia
I was diagnosed with RRMS age 28 although im pretty certain it started age 25, if sleeping was an olympic sport back then i’d have been a champ :-)…31 now and still RRMS
Cat
rrms dx the week before my 50th birthday
carole x
Hi Sonia. I was diagnosed at 36 with RRMS and with SPMS 16years later.
Mary
Thank you for your inputs guy’s. I shall sit and wonder until the 16th Oct. Sonia x