Hello everyone. I’ve had MS for 33 years and about two years ago, started to have excessive sweating mostly on my torso. For the past year, I have seen different doctors who have changed my blood pressure medicines and I have stopped some medicines to determine if they were the cause. They have done bloodwork, checked my thyroid, I’ve tried prescription, deodorant, and absolutely nothing has helped. I don’t have trouble with sweating at night, only during the day. Has anyone else had this problem? I don’t know if it is MS related, a side effect of the mavenclad, and my doctors are stumped.
Hi Chrismas. Not me and I haven’t heard of it but I will have a look around and let you know if I see or hear of anything
Hi Christmas,
Sorry to hear of your problem.
My husband had similar problems when he was first given several BP meds - one that played havoc with him was Ramipril. Try and get the docs to cut back on the meds where possible, sadly once they start prescribing medications it seems like a slippery slope. We have had hubby’s meds cut back to the bare minimum and touch wood they seem to be working (no more collapsing) and the excessive sweating has lessened too.
Best of luck and please keep us posted if you get to the bottom of the issue.
Hi Christmas ,
I saw my doctor last week for excessive sweating he’s sending me for blood tests to check thyroid levels. But this can be a symptom of autonomic dysfunction, excessive sweating or no sweating at all. Your doctor can prescribe medication to ease these symptoms and they can recommend a deodorant to use, but if you’re suffering with bladder issues the medication will make this worse.
Hi everyone, my name is Tat, short for Kathleen. I’m looking for advice if anyone has the time to help. I’m feeling a wee bit guilty as I’ve not had MS fully diagnosed. I was diagnosed with Possible MS 18 years ago. I had had chronic trigeminal neuralgia on and off some years before I eventually attended Neurology with numbness in my lower leg. The neurologist found historical and recent lesions from the MRI scan compatible with MS. The other tests were inconclusive. I was informed to return once a year for tests although advised it wasn’t necessary if I had no symptoms. I have just recently become aware that neuralgia, fatigue, eye pain, heavy legs syndrome, urine infections and depression were symptoms of MS. I’ve had these symptoms come and go for years. I have had slight numbness and pins and needles too but as it wasn’t painful I never thought it was anything to worry about and just ‘getting older’. I have also had major depression, a serious suicide attempt, anxiety and serious night sweats recently, mainly in my torso and my legs which have been linked to the menopause. I have been prescribed everything for these drenching night sweats, nothing has helped. I was once again referred to Neurology 3 years ago as when I bent my neck I felt an electric shock type pain in my ankle for about 6 weeks. My new neurologist confirmed that it was not related to MS as it was too small an area, I had no tests. Although he tested my reflexes and asked me to walk in a straight line. Over the last 2 years I’ve had 3 episodes of a painful left arm, my first doctor’s visit put it down to stress, my 2nd episode he thought it might be Carpal tunnel syndrome as I had pins and needles with it so referred me to Physio . This summer it returned and this time with a vengeance, it has been absolutely unbearable. The Physio assessment resulted in me being diagnosed with nerve pain. Amitriptyline, Gabapentin and cocodamol have helped somewhat, I think and hope it might be getting better. I’ve had it for about 8 weeks. I now have to wait 6 months for a neurologist appointment. I’m suspicious that these night sweats may be due to MS too. I seem to have no working thermostat in my body! I’m beginning to worry as my nerve pain was so bad if it returns even worse I’m sure I won’t be able to cope. I’m also disappointed that I’ve not been informed of what MS symptoms can be. Now I’m researching I’m aware that some of these symptoms can be treated and prevented from becoming worse and instead I may be left with lasting nerve damage. At the moment my legs are heavy only when walking upstairs, I’m having an electric shock sensation when I bend my toes and I’ve nerve pain in my arm. I’m sure people think I’m a hypochondriac. Can I push to have these tests sooner and therefore the treatment? I live in Scotland in the UK.