I only joined last night so I’m very new to this!
I was wondering if there was anyone who could give me a bit of advice?
I am currently having my second relapse of the year, and am on tysabri, I’m off to see the consultant today, so I’m sure that will be helpful.
I feel that my relapse is due to stress. I live in a ground floor council flat, had to move out of mum and dads as I could no longer walk up and down stairs to get to my bedroom.
Anyway, I have been here since 2009, and I’m not exaggerating but it is horrendous.
There are parties every week, constant noise from inconsiderate neighbours, screaming and shouting all day long.
The parties go on until 6am! I have spoken with them, only to come home to spit on my front door, or key marks on my car- I know I can’t prove it was them, but it seems to happen after I’ve spoken to them.
Worse part- they know that I have MS and I heard them laughing about it last weekend, talking about me being in a chair. It didn’t upset me, it frustrated me as they do not say nothing to me?
The housing association changes my housing officer more times than I have had hot dinners! I now have a new one again who wants to start a “fresh!”
I need to move from here, but I just don’t know what route to take. My mum stays with me a lot as if my boyfriend is away I need someone to help me. I currently don’t receive DLA for care, but have put in for this and should hear soon. Due to having bad relapses, I can’t be here on my own for very long, its a struggle, I usually end up falling or hurting myself.
When I spoke to the housing association that I am with, I asked them if I would be entitled to a two bed, so my mum had some where to sleep and not just the sofa? They were unable to answer this?
I feel like this is having a massive effect on my health and I just don’t know what to do anymore??
Should I tell my consultant?? I am so fed up with being poorly and unable to rest due to horrible people that live here.
Would be very grateful for any advice given,