Advice please as to what (if anything) I can do

New diagnosis and before diagnosis
1

Hi all,

I started having what I would think sounds like a relapse, 3 weeks ago today.
It started with all my previous pains and numbness coming in at 100 x the intensity all at once and the fatigue has been unbearable.
A week ago, the colour vision darkened in my right eye and I started seeing bright flashes, my chin on the right side started to twitch also. This is in addition to my numb hand, knee with rock hard right muscles behind it, big toe joint pain and my bladder issues.

I’ve been to my GP numerous times since 2014 for being unable to empty bladder, my knee, and was also diagnosed with Bipolar that year.
Despite having scans show I can’t empty bladder and no physical reasons with my knee, there was never a follow up and these thing would pass.

A year ago, the numbness in my fingers started and my bladder issues intensified, they haven’t improved and this prompted another bladder ultrasound in Dec, again showing I can’t empty it. No further action.

I told my Dr 3 weeks ago about all of this and had a call booked for last week. They cancelled on the day due to illness and now I am rebooked for a phone call next Friday the 16th.

Yesterday, I couldn’t get words and when I could find them, I sound drunk. Also my right leg felt like it grew 4 inches and is numb. I can’t lift it when walking so am shuffling. Was better this morning but it’s like these things tag team throughout the day?

I told my GP again as I’m so unsure of when is urgent and needs A and E but they seem unbothered and my appt in a weeks time by phone, remains.

Can I ask, is this normal for the GP?
At what point should I be worried?

I’ll be honest, I am terrified of these things and feel like no one cares.
It’s been really scary. I am a lone parent carer to my 12 year old son who has a rare chromosome deletion and is constant care and I am really struggling. I mentioned to my Mum that I think it might be MS (I’m 48) and she dismissed it and said “let the Dr diagnose you”
Well, I would if they would see me!!!

My aunt was diagnosed 30 years ago and is in good health for the most part.

Sorry for huge book. This is scary and I just want to know that I’m going to be ok.

Thank you for reading x

2

Hi Ivy, have you asked your GP about MS?

3

Yes, I told them about my aunt and 5 days ago I asked for a referral as I wanted it to be checked out. I was told that until they have the telephone appointment with me, they won’t do anything. That is next Friday so another week yet.
They haven’t seen me since this started 3 weeks ago but I have told them about all symptoms and new ones as they have developed. Mainly as I’m terrified and want reassurance.

4

Go to see your optometrist. You’ll not wait long for an appointment, it doesn’t cost much and if their examination of your eyes suggests disease, their referral can really get things moving.

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