My first time posting on here. I have had a rollercoaster of a journey so far.
I will try to keep it brief
My difficulties started 8yrs ago when I blinked and list the sight in my Left eye. This lasted 2 days and I was diagnosed by a GP with migraine.
Around 2months later I once again lost my sight. In my L eye. After3 days I called my GP and got the new locum. He diagnosed me with potential optic neuritis and sent me to the eye clinic, us a neurologist referral.
While waiting for the referral I lost the feeling in the left side of my body, I could walk with a limp but had no feeling. I was taken to hospital for an emergency MRI told they could see several lesions 3 on my brain and 4 on my spinal cord.
I would need to wait for my neurology appointment.
I had my appointment and he said they would watch and wait.
Fast forward over the next few years I have another 5 bouts of optic neuritis (now lost partial sight in 1 eye) plus other more minor problems and 2 new lesions.
My last neurology appointment he stated that he is diagnosing me with CIS and I will be discharged. Fast forward another year, I have been struggling with swallowing, I was diagnosed with indigestion and reflux, however symptoms got so much worse and I couldn’t swallow food or liquid. So sent for a manometry.
So now have a diagnosis of Achalasia. I am awaiting the treatment to reduce my symptoms.
Looking into Achalasia it is an autoimmune condition and affects the nerves in the throat/stomach .
My question does anyone else have this condition and MS or do you think I should ask to once again be referred back to neurology to see if the dots line up?
Thank you to everyone that took the time to read my story so far.