One day, there will be a holistic service that kicks in when a person is diagnosed with a potentially life altering disease. All the services will be brought together, specialist nurses (eg MS nurses), social services, housing services, benefits, continence specialists, physiotherapy, OT, psychology, wheelchair services, orthotics, FES, employment advice including access to work, (plus everything I’ve not thought of). Groups such as Rona started up won’t be needed, because we will all have the contact details of all available services. And maybe a coordinator to ensure we all have all the help we need to live decent, healthy, productive, happy lives.
Wouldn’t that be good?
Meanwhile, we are lucky to have this site. Rona and her ilk do wonderful things in their local communities. Hopefully there will be more connected services in the future.